Hi everyone. So all of this has occurred since 12/15/2021. My biopsy results came back diffuse B cell or follicular. Then the cytogenetics (FISH study) came back somewhere between double hit and Burkitt (MYC and BCL2 issues). Now I definitely have something I get it.My PET/CT came back for FDG avid in nodes above and below diaphragm (right armpit and mesentery, knew that going in).
I am 55 in relatively good shape and have no other symptoms other than abdominal tenderness sometimes where the… read more
Hi! I have/had DLBCL. When I was first diagnosed with my lymphnode biopsy and bone marrow biopsy they thought I might have double hit. My Oncologist in my area sent my slides to the Cleveland Clinic. I didn't have double hit, just DLBCL. I had 6 treatments of RCHOP chemo. I'm glad I had another set of eyes look at my slides to make sure I was on the right chemo. Good luck. Kelly
Hi Pat. EBER negative. Biopsy next. Most of the time I am “ok.” I do have my moments. Thank you. Mike
Thank you Kelly. I think I might have my sent to Sloan Kettering. Some folks think they mixed up my sample without someone else’s so they want another biopsy. Whew!