What Advice Do You Have For Others About Managing Fatigue? | MyLymphomaTeam

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What Advice Do You Have For Others About Managing Fatigue?
A MyLymphomaTeam Member asked a question 💭
posted May 5, 2022
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A MyLymphomaTeam Member

Don’t be hard on yourself. Your body is in a literal fight for its survival. I found myself being in the middle of things and then awaken several hours later and I was still tired. I’d fought off follicular lymphoma three times between 2005-2915, and today I received my first infusion for my fourth fight and I am tired, but couldn’t rest. I take rest as I am able to get it. 😀

posted May 5, 2022
A MyLymphomaTeam Member

I exercise and drink plenty of fluids. If I have a day where I'm fatigued I give myself permission to rest that day. I used to clean my whole house in a day. Now I do a room at a time. I used to do everything myself but now I rely on others for help when needed. I have a lot of support from family.

posted May 5, 2022
A MyLymphomaTeam Member

managing fatigue.... take short breaks in between. It took me some time to accept I did not have a cape anymore and my super hero days were over. I have a new normal. Give yourself permission to be different now and adjust. That was tough for me to understand that I couldn't do what I used to, I get it...but it's OK now... we are still here and are beautiful beings worthy of a healthy loving life!

Now,If your working still, go to part time if you can. Set an early bed time, stay away from sugary foods and limit caffeinated drinks, they don't help anyway. Don't be ashamed to ask for help. Use a tall stool to do dishes, a chair to do laundry, etc....deep breathing exercises in the early morning fresh air. Oxygen helps. Chair stretching exercises with no resistance. moving the joints and muscles keeps fresh blood flowing to the heart and lungs this can be very slow and with ease. And of course check with your doctor on all this advice as I am not one.

love and kindness to your journey

posted May 31, 2022
A MyLymphomaTeam Member

Sounds crazy but I exercise and keep going. I don’t give in during the day. I find I sleep better at night this way. A nap ruins my sleep

posted May 5, 2022
A MyLymphomaTeam Member

I have come to realize that I have to treat my energy as a finite resource. So now I try to plan where my energy goes. If I know I want to cook dinner one day, I make sure I do nothing else. If I want to spend time with friends, I minimize other things. It's like having a tank of gas and knowing how far I can go on it. I have had to learn to respect this idea...prior to this I was often frustrated with my level of fatigue. The biggest part has been accepting that I can't be now what I was back then. Of course I'm hoping this will improve, but I have to respect my current reality.

posted May 5, 2022

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