I have large B cell lymphoma (NHL). It seems like chemo is the most recommended treatment. However, I am having a very hard time accepting that chemo is the “best.”
Has anyone used alternative treatments, that have been successful, in treating large B cell lymphoma?
I also was diagnosed with large B Cell NHL mine was pretty aggressive , 9 spots plus on on 7 c had 5 successful radiation on then started RCHOP 6 treatments in Dec2021 I was 78 at the time. I lost hair after 2 weeks with first RCHOP couldn’t stand the handfuls, and pillow , so got a GI Joe haircut that worked. I never cried bout the hair , it was just hair, I did get a wig, for when I went out, used scarf or Bennie . Tiredness hit after my3 rd , but when my body wanted to sleep ,nap etc I did. I thought I will tend to the rest later. I hit remission in July and did 4 spinal infusion of methotrexate for prevention, as he told me if mine came back it would be bones or brain, just finished 4 of those,I had a port but it caused a blood clot in the jugular so we removed it with first spinal infusion. I feel great hit 79 and now it’s cool weather in AZi am back to walking . Yesterday I got my Covid and flu shot, I asked oncologist as last Friday was last infusion, only have sore rms today. Keep positive it helps and at your age you might get offered stem cell. My husband of 59 years has AlZ I practiced this with him until h went into memory care when I got NHL then I used it for me. Best healing
After meeting with the specialists at UVA for a second opinion on treatment, it does sound like RCHOP is the way to go. I start my first treatment Monday, October 3. I will have 4 treatments 3 weeks apart. I am ready to get this ball rolling. If anyone has any suggestions of things that they want to share to make life a little easier during the weeks of fatigue, I am all ears. I am a planner, and plan to make some meals ahead of time, have my house as clean as a single mom with 2 kids can get it, and have all of my grocery shopping done for the week. I also have bought my cozy socks, great books, beanies that look amazingly comfortable for the hair loss, and am ready to rock! I plan on working full time during this whole process with the exception of taking off for treatment days and the occasional day if absolutely necessary for fatigue/nausea. Bring on the process to kick this out of my system and let me heal. ❤️
Sorry I was offered 6 treatments of RCHOP every 3 weeks, and I started first part of Feb , in Jan I had 5 successful radiation on c7 , and in July I hit remission , so it worked well for me, and my body at almost 79 handled it fine, a little fatigue but I do believe in it. My oncologist suggested 4 treatments of methotrexate to prevent it coming back so will do 4 th spinal infusion tomorrow, and be done for now. Good luck
Thank you for your response. I am so glad to hear how God blessed you and that you are in remission. ❤️
Hi and welcome to the site. I too have/had DLBCL stage IV. I had treatments of RCHOP chemo and have been in remission for about a year now. I was so ill when I was diagnosed that RCHOP chemo was the best for me. I had all the "B" symptoms. Fever, night sweats, nausea, weight loss etc. I believe that if I wouldn't have had RCHOP I wouldn't be alive right now. That and by the grace of God. If you have any questions please feel free to ask me. Good luck in your decision and I added you to my team. I hope you have a peaceful and blessed day. Kelly