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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Stage 3 A Nlphl

Stage 3 A Nlphl

Hi. My son has stage 3a nlphl on a watch and wait process. As its more advanced should he be getting treatment or is there no difference between success of treatment now or later?

Also how often should he be have Pet scan?

posted 5 days ago
A MyLymphomaTeam Member

Hi there. I would think it would depend on how advanced and where located. Sometimes it doesn't hurt to get a second opinion form another oncologist.

posted 5 days ago
A MyLymphomaTeam Member

Hi Andrew. I have Nlphl.and also on a watch and wait. My lymphoma is low grade and I’ve had nothing done for 8 years. Things have changed a little bit this year though and two lymph nodes appear to be growing on my aorta. I got scans every year but missed out on two due to covid restrictions. I’m back at the hospital in January and I think it may be time for treatment. Try not to worry too much as I think your sons doctors are well on top of it. I was told I would know in myself if things weren’t good and had a number to phone if i had to speak with my doctor. Hope you and your son stay well and things are done when they are needed. Wishing you both good luck and health. Tom Edinburgh Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿.

posted 5 days ago
A MyLymphomaTeam Member

AndrewHayes,
Hi and welcome to the site. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for about 21 months now. My Oncologist at the Cleveland Clinic insisted upon a PET scan. She said that it is the "Gold Standard." Plus, my husband always says "Get data data data." And he's been right. We've kept a log of all my blood work that's helped in seeing my progression of healing. I'm sorry I don't have an answer to your treatment question. My lymphoma was aggressive and I needed treatments right away. I hope you and your son have a blessed day. Kelly

posted 5 days ago

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