I may have had something similar to what you're describing. So I'll give a response a try. During chemo I recall complaining that my leg bones hurt and reminded me/ brought back memories of similar pain when I was a growing boy. Apparently that was normal, the "growing pains" After the chemo ended and maybe during (I don't remember the during) chemo I developed severe lower back pain - I'd always had a marginal lower back but this was much worse. I'm pretty much convinced it is a consequence of taking the Prednisone (a steroid), 100 mg a day for 5 days every third week.

[My routine for chemo was one week of steroids, the week of chemo, one week of rest, then it repeated, for 6 months.]

I was prescribed Gabapentin for the pain, a drug that has an effect on the nerves and it worked well. I took that for maybe 3 years after the chemo and now I haven't needed it for awhile. The reason I stopped it was that it was making me nauseous, and I really didn't need it anymore. I haven't taken it for around 6 months now.

I will also add, as I remember things at random; I was experiencing some sort of heart irregularity. A weird beat, started with a good strong beat, then a lesser strength beat, followed my a weak beat, skip a beat and then a strong beat - something like that. Wasn't considered to be serious but it sure made me uncomfortable. The Gabapentin cleared that up too, and it also is still under control.

Lora,
Hi and welcome to the site. Everyone on here is so kind, helpful and supportive. I have/had DLBCL and had treatments of RCHOP chemo. I've been in remission for about 21 months now. Yes, after chemo I started having severe arm and shoulder pain, bilateral. I went to an Orthopedic Dr and he said it was arthritis etc. It continued to get worse. My Oncologist recommended a rheumatologist and here I have PMR. It's an autoimmune disorder. I have to be on Prednisone for 18months. I've gained 40lbs unfortunately on it but my pain is 90% better! I believe my chemo and the effects caused the PMR. But I'm alive. And I thank God for RCHOP. Good luck with your situation. I hope you find an answer soon!!! Kelly