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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Lebanon, ME

My memory since chemo is getting worse. If I don't do something I forget. If I pick something up to take it somewhere, get distracted, put it down I forget where and even what I was planning to do. I'm wondering if others have this experience.

December 7, 2022
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Answer Summary

Members strongly confirmed that memory loss after chemotherapy is a real and common experience, with many describing frustrations like... Read more

Members strongly confirmed that memory loss after chemotherapy is a real and common experience, with many describing frustrations like forgetting where they placed items, struggling to recall names, and needing to repeat tasks multiple times to ensure accuracy. Several members shared that while cognitive issues persist even years after treatment, they have found ways to cope, including brain games, improving diet, monitoring blood levels, and simply giving themselves grace when memory fails. A recurring theme was gratitude for being in remission despite these challenges, with members reassuring each other that chemo brain is normal and encouraging self-compassion while navigating daily life.

A MyLymphomaTeam Member

I also have memory loss. Not to be funny but I can’t even remember when it started. It’s gotten worse in the last few months. If one of my friends brings a friend over to my apartment, they’ll introduce me to them and tell me their name . When they come the next time I look at them and ask if I know you? They say they have and I have to explain what’s going on and they are very understanding.
I’ve gone through R Chop Chemo in August of 2018. I don’t remember why I go into a room to get something. I also have had stomach issues called Gastroparesis where my stomach muscles are weak. My body and muscles hurt all the time. This has taken a toll on me all around

December 10, 2022
A MyLymphomaTeam Member

Cognitive dysfunction otherwise known as "chemobrain" is quite common - https://news.cancerconnect.com/treatment-care/s... Best C

December 11, 2022
A MyLymphomaTeam Member

I was a Sr Engineer... I had to go on disability because of the chemo brain. I had to perform tasks 3 or 4 times to ensure that they were correct. Good news is (if it really is), I was able to get SSD very quickly with cognitive impairment as the reason. I loved my job and really wish I could have continued working for another several years.

December 11, 2022
A MyLymphomaTeam Member

Yes. Everything you said. Definite chemobrain/chemfog!

December 10, 2022
A MyLymphomaTeam Member

Wow! I thought I was the only one that suffered from memory loss. I am going to see a neurologist because it is so bad. They may be ordering neurological testing just to get a baseline. I’m comforted to know that this isn’t just me.

December 10, 2022

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