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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone on here have Diffuse Large B Cell Lymphoma?

A MyLymphomaTeam Member asked a question 💭
Huntsville, AL

I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.

Answer Summary

Members came together to share their experiences with Diffuse Large B Cell Lymphoma (DLBCL), with many confirming that while the diagnosis is... Read more

Members came together to share their experiences with Diffuse Large B Cell Lymphoma (DLBCL), with many confirming that while the diagnosis is serious, it is often very treatable. Several members shared that R-CHOP was the most common treatment, with many achieving remission, and some turning to CAR-T cell therapy after chemo did not fully work. A recurring theme was the importance of staying positive, being proactive with doctors, and leaning on faith and community support throughout the journey.

A MyLymphomaTeam Member

I had stage 5 DLBCL Diffused Large B Cell Lymphoma they said I wouldn't make it, as of January I am 6 years in remission, you can beat this

February 17, 2024 (edited)
A MyLymphomaTeam Member

Everyone experiences different side effects but mine haven’t been too bad so far. I’m getting RCHOP number 5 next week. I still manage to walk around the nearby streets every day but my neuropathy is getting worse . I’ve never had nausea cos I take the medication. 💊 contstipation and diarrhoea can also be managed with 💊. Haven’t felt much like eating cos food just doesn’t taste that good . Have lot about 5 kg but that’s ok . Keep a record of your side effects and let your dr know before your next treatment. Be pro active !

December 26, 2023
A MyLymphomaTeam Member

Your the same story as me I had NHL with Diffuse Large B Cell last year, today I am in remission since Oct 2023

May 1, 2024
A MyLymphomaTeam Member

Did you get Rchop treatment? I'm getting it now supposed to get 6 cycles every 21 days.

November 8, 2023
A MyLymphomaTeam Member

I was diagnosed December 2021. Started chemo in February 2022 and ended chemo in July 2022. Oncologist says I’m in remission now and my next PET scan is in February 2024.

September 5, 2023

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Any DLBCL folks on here?

A MyLymphomaTeam Member asked a question 💭
Camden, SC
May 23, 2023

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