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A MyLymphomaTeam Member asked a question 💭
Medway, MA
January 14, 2023
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Answer Summary

Members shared deeply personal approaches to telling family and friends about their lymphoma diagnosis, with strategies ranging from calling... Read more

Members shared deeply personal approaches to telling family and friends about their lymphoma diagnosis, with strategies ranging from calling close loved ones directly, starting a CaringBridge blog to keep everyone updated in one place, or selectively sharing only with supportive people while protecting their own peace. Several members described mixed reactions, including overwhelming love and support from some (like friends bringing meals and offering constant prayers) but also people who pulled away or stopped asking about appointments over time, leading many to realize who their true support system was. A recurring theme was that there is no perfect way to share such news, the timing and method depend on individual circumstances, and it's okay to protect yourself by not telling everyone or waiting until you feel ready.

A MyLymphomaTeam Member

I did not tell my mother. . .for many reasons. 1) she is elderly, 2) she is a narcissist and 3 I didn't need the stress of dealing with her overacting about my health. Later when she found out I just said. Oh! well its not something that I felt compelled to share with everyone. . . I shared only with people that were supportive. And that worked for me.

February 17, 2023
A MyLymphomaTeam Member

I was so very, very sick/in pain for quite a long time before my diagnosis. I couldn't care for myself at all other than I could toilet myself. My family and friends all knew of how sick I was. I had lost 80 pounds over 12 months. When I finally got my diagnosis, I was glad because I finally knew what was making me hurt so much. I told my grown children right away because I finally felt like now, I could get the right medication/chemo to finally get better. So, it was with delight I told everyone. I realize this is a very uncommon, but I was so relieved to get an answer to what ailed me. BTW, I was stage 4 of DLBCL and after chemo I was cancer free.

January 17, 2023
A MyLymphomaTeam Member

Hi Joe,
Thanks for your sharing. I am glad you got the right diagnosis and are doing well.
Barbara8

December 26, 2023
A MyLymphomaTeam Member

Hi MikeC,
Thanks for your answer. I agree it is good to be open about the lymphoma. You have some really good friends!
Barbara8

February 27, 2023
A MyLymphomaTeam Member

That's a tough one Barbara. I don't think one size fits all. I received much support being open and candid. Sorry to say, much unlike behavioral health issues, there's a lot of concern. Friends were dropping off lasagna dinners all the time and constantly praying. I hope someday mental health patients will receive this kind of empathy though remission might be most elusive. ❣️

February 27, 2023

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