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A MyLymphomaTeam Member asked a question 💭
Lancaster, CA

Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.

February 3, 2023
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Answer Summary

Members overwhelmingly supported getting the shingles vaccine after an oncologist recommended it, with many sharing that their doctors... Read more

Members overwhelmingly supported getting the shingles vaccine after an oncologist recommended it, with many sharing that their doctors strongly advised vaccination due to the increased risk from weakened immune systems. Several members described firsthand experiences with shingles as excruciating, painful, itchy, and lasting weeks or months, with one member sharing how it affected their eye and required a year of treatment, while others who got the vaccine reported only mild side effects like a sore arm and fatigue. A recurring theme was that while some members expressed vaccine hesitation after swollen lymph nodes or lymphoma diagnosis following COVID vaccines, the consensus was clear that the risk of shingles far outweighs vaccine concerns, especially since the chicken pox virus is already dormant in the body.

A MyLymphomaTeam Member

I have had shingles twice. I just put off getting the vaccine. After lymphoma diagnosis, I received the vaccine. Feel better about it. The vaccine is sooo much better than having shingles. Follow the advice of your oncologist, for heaven’s sake!

February 27, 2023 (edited)
A MyLymphomaTeam Member

Personally I would go for it, I had shingles a couple of years ago, it effected my right eye, in effect my only eye that functions adequately, I was under the eye hospital as an urgent case initially then had ongoing treatment for a year was unable to drive as I could not see adequately, thankfully after treatment and cataract surgery I can now see well, but the shingles itself was horrendous, painful and itchy the pain was intense and had lesions all around the right side of my face which thankfully have now cleared up. Obviously I appreciate you not liking the idea of toxins in your body but it would hopefully help you prevent a very nasty and painful illness that can leave you with a multitude of health issues on top of what your body is dealing with. Hope you find the right decision for yourself. Regards Gillian.

February 8, 2023
A MyLymphomaTeam Member

I hear shingles can be VERY painful. I did get the vaccine.

February 5, 2023
A MyLymphomaTeam Member

Rebecca
Thanks I’m going to ask my oncologist when I go in next week.

March 19, 2023
A MyLymphomaTeam Member

As a nurse (retired now), I saw how terribly patients suffered from shingles. I had the original shingles vaccine about 15years ago. It is not as effective or long lasting as the Shingrex. After CAR-T cell therapy I have had to get all vaccines, including childhood vaccines, again. I have had the first Shingrex with only a sore arm and will soon get the second. Even if I had a worse reaction, it would be preferable to having shingles. The pain from shingles is excruciating and can last for weeks or even months.

February 22, 2023

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