Good luck on your appointment. Prayers and Huggs. 🙋🏼‍♀️💜

I was just diagnosed with Nodal Follicular Helper T Cell Lymphoma. Looks like mine is localized. After fairly good scans and blood work; the oncologist told me it was localized and no treatment. Oncologist dismisses my symptoms as multifactorial, since I am a full-time caregiver to my very ill husband, work full-time, and can carry on through fatigue and pain. I am seeking a second opinion.

Hello. Sorry so late with a response. Yes I will have my third chemo treatment on May 16. I did have side effects but they were not horrible and I made it through.
Good Luck.

Hello Patricia8,
I hope you are adjusting and doing well. I was diagnosed with Follicular Lymphoma in 2020. I went through 6 months of chemo and 2 years of immunotherapy and my cancer staged a comeback. I started a new treatment in Sept 2022, but side effects were not worth proceeding so we're looking at CAR-T. Have you received treatment?

Chris

I was diagnosed in February 2004 with Mycosis Fungoides and Follicular Lymphoma (both are t-cell nhl’s)