Is There Anyone In This Group Diagnosed With Non-hodgkins Large B-cell Lymphoma In The Cns Fluid ? Looking For Someone To Talk With. | MyLymphomaTeam

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Is There Anyone In This Group Diagnosed With Non-hodgkins Large B-cell Lymphoma In The Cns Fluid ? Looking For Someone To Talk With.
A MyLymphomaTeam Member asked a question 💭
posted March 4, 2023
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A MyLymphomaTeam Member

Nan,
Hi! I was diagnosed with DLBCL but not in the CNS fluid. I had treatments of RCHOP chemo. I've been in remission for 2 yrs now. If I can help in anyway, please feel free to contact me at: (Phone number can only be seen by the question and answer creators). I hope you are having a peaceful day today. Kelly

posted March 4, 2023
A MyLymphomaTeam Member

Charlene,
I'm so sorry for your loss. Kelly

posted April 6, 2023
A MyLymphomaTeam Member

My friend Claude lost too much weight because he felt full all the time with the large B cell lymphoma. His cancer specialist said no chemotherapy for him because he was too skinny to take it. He passed on March 31 2023. And I will truly miss him.

posted April 5, 2023
A MyLymphomaTeam Member

I had NH B-cell Primary CNS lymphoma. It was in my brain. Lots to say, but I want to talk about the last 3 weeks. I went to my 6 mo. checkup and the Doctor said she's done with me because I have no more chemo cells. I'm not sure what they're called. I said I was hoping for an mri because my head feels weird. Again, she said no because I have no cells. Then she told me I have Leukocytopenia. I read about it and it said I have nine months. Reading a different site said I can have up to three years. Now I'm in hospice. This is exactly NOT WHAT I want. I'm in a wheelchair. Enough whining, but I'm overwhelmed with all of this.I'm so sorry I'm having a pity party.
To answer your question, I did not have RCHOP chemo. I wish you much success.

posted March 22, 2023

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