How Many Members Are Diagnosed With Mycosis Fungoides And Are Self- Treating With Narrow Band UV Light?

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A MyLymphomaTeam Member asked a question 💭

If there are any members with this comparatively rare Lymphoma, I'd like to compare notes about the light box treatment process and wonder if anyone else would.

posted March 25, 2023

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Thanks for your response and glad to hear you're now on top of it! All good wishes, Tony

posted March 28, 2023

Hi Anthony, I have stage IV Sezary Syndrome diagnosed in 11/2020. This is common with your diagnosis. I tried the light treatment and it did not work for my skin it only irritated it more. I have getting treatment with mogamulizumab and get this with iv infusion every 2 weeks since 2/21.
It took 6 months but my skin really cleared up and my cancer numbers are good.
I hope this helps
Melanie

posted March 28, 2023

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