Have Any Of You Had Lymphoma In Your Supraclavicular Nodes (just Above Your Collarbone)? | MyLymphomaTeam

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Have Any Of You Had Lymphoma In Your Supraclavicular Nodes (just Above Your Collarbone)?
A MyLymphomaTeam Member asked a question 💭

I hope it's OK to post here even though I haven't been diagnosed with lymphoma, but my doctor says it is a possibility. I have an enlarged (about 3cm) supraclavicular node that is hard and two more hard nodes (about 2cm each) above it in my neck. I am sweating profusely, but mostly during the day and I'm tired most of the time. I have an ultrasound and CT scan scheduled later this week. Thanks in advance.

posted June 5, 2023
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A MyLymphomaTeam Member

I had lymphoma cells in my clavicle, liver and bone marrow. All of it was verified by biopsies.
I did receive a bone marrow transplant last year and now the lymphoma is undetectable. The greatest gift I ever received from an anonymous donor!!!

posted June 10, 2023
A MyLymphomaTeam Member

The first time I had lymphoma, I had a large golfball sized tumour in the clavicle (as well as lots of other areas!)

posted June 9, 2023
A MyLymphomaTeam Member

RoxaneVermeland,
Thanks for the reply!
I am new to this, but I have been researching. When you say you've had many of them, is that because your lymphoma is returning and that's where it is showing up? Also, what diagnostics did the doctor use to diagnose you I initially? Thanks!

posted June 6, 2023
A MyLymphomaTeam Member

Yes. I have had many in my Supraclavicular nodes. They usually biopsy them and almost always light up on my pet scan. Most positive unfortunately. 🙏

posted June 6, 2023
A MyLymphomaTeam Member

DanielleMayo,
I'm sorry you have had to go through that. I appreciate you commenting and sharing your story. I pray the doctors can find what's going on with my symptoms. The worst part is being so tired. We have a farm and by noon I am so tired I can't hardly function and I'm literally drenched in sweat.

I will pray that you get answers.

posted June 6, 2023

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