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I am a 63 year old woman. I have a marginal b-cell lymphoma and have had 3 out of 6 chemo treatments.My kidneys were under attack so I had to suddenly get on chemo. They are doing much better now. I also have lupus and and sjorgrens disease. I have had soo many problems after doing chemo and rituxin,that I am so scared to continue.I have neuropathy in my feet, just got bells palsy on the right side of my face,could not move for a few days due to an attack on muscles,joints,etc.The pain was… read more
Hi Merri,
I am so sorry you are feeling so awful…. I was diagnosed with marginal zone lymphoma at 62.
I am now 69 and doing well.
I did have 2 treatments during these 7 years. First, just Rutuxin and I relapsed in about 14 months.
I then had Bendamustine a chemo, and Rutuxin for 6 cycles.
Are you on these two?
I was told Bendamustine was not too strong. I was a bit tired during 4th, 5th and 6th cycle and a weird stomach on and off but that was all.
Terrible you are feeling this way.
I have been in a partial remission for 3 years. I may go on a pill named zanubrutinib soon since my recent pet scan showed some activity and now ready for more treatment doc said. It is only 2 years old and good results for MZL
and CLL.
Hope you are seeing a
Hematologist that specializes in lymphomas. Sounds like your doctor needs to put you on a new treatment plan…
Thinking of you and keep in touch.
Ours is slow growing and responds to treatment well.
Take care hope you feel better soon
DonnaL❤️
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