Hi Merri,
I am so sorry you are feeling so awful…. I was diagnosed with marginal zone lymphoma at 62.
I am now 69 and doing well.
I did have 2 treatments during these 7 years. First, just Rutuxin and I relapsed in about 14 months.
I then had Bendamustine a chemo, and Rutuxin for 6 cycles.
Are you on these two?
I was told Bendamustine was not too strong. I was a bit tired during 4th, 5th and 6th cycle and a weird stomach on and off but that was all.
Terrible you are feeling this way.
I have been in a partial remission for 3 years. I may go on a pill named zanubrutinib soon since my recent pet scan showed some activity and now ready for more treatment doc said. It is only 2 years old and good results for MZL
and CLL.
Hope you are seeing a
Hematologist that specializes in lymphomas. Sounds like your doctor needs to put you on a new treatment plan…
Thinking of you and keep in touch.
Ours is slow growing and responds to treatment well.
Take care hope you feel better soon
DonnaL❤️