Hello
I was diagnosed with Waldenstrom
Christmas Eve 2021. The oncologist told me over the phone after I had a bone marrow biopsy. When he told me, I didn’t hear a word he said after that. I was home alone when he called. I told my husband when he got home.
I did not tell my family through the holidays, it was very hard to keep that secret but I didn’t want to ruin Christmas for my family.
I have had no treatment, I am on a watch & wait situation. I am fatigued all the time, have lost 25… read more
I have the same diagnosis 1/2022, via bone marrow biopsy in treatment currently with MD Anderson. I have been on targeted drugs and now on Valcade 4 x a month with infusion 1 x per month. Treatments are not wonderful but thought I would give it a try. What does your doctor mean by “wait and see” what are you test results? Are you not wanting to treat? I’m not as fatigued as I was before treatments . It started as nose bleeds and fatigue for me. I hope you can get it into remission.
Oops hugs