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A MyLymphomaTeam Member asked a question 💭
Buffalo, NY

Had an auto t-cell transplant with relapse and they want to use just romidepsin for treatment.

October 11, 2023
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A MyLymphomaTeam Member

My story abreviated. 9/2018 Diag DBCL tranformed from Folicular. RCHOP, Radiation, reccur. More Chemo, recur. 6/2. 023 came CAR-T. A bit ruff but made it. Glad I had extra adapos tissue to work off of. For CAR-T, modre depletion of cells, more radiation. Here I am 3 years later. My bone marrow is sort of shot! Every 2-3 weeks get shot GSF and Leukine to push my bone marrow. Every 4 weeks a bag of Pentamadine to prevent fungal infection of lungs. So any vacation needs to be planned around my counts. I have the best medical team who will do what I need. Took a 14 day voyage on train Chicago to SEA to SF to SJC and back!! Got shows two days before we left and get shots upon our return. My issue currently is the want me ANC to be below 0.5, last year it was 1.0. f course I prefer the 1.0 so I walk in with a few articles, I know they love that!.. I used to work in healthcare with cancer patients. Not intimidated by the Docs. Wish you the best and hopefully good health.

June 7
A MyLymphomaTeam Member

So far, I've been unable to Complete 3 treatments consecutively due to low anc levels. But I do feel better.

December 5, 2023

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