Does / Did Everyone Have Access To A Nurse Navigator? | MyLymphomaTeam

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Does / Did Everyone Have Access To A Nurse Navigator?
A MyLymphomaTeam Member asked a question πŸ’­

Does / Did everyone have access to a nurse navigator? Maybe called something else at your treatment center. This would be a RN guide who can help you navigate the hospital, social services, and care options.

What was your experience with a nurse navigator?

posted November 17, 2023
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A MyLymphomaTeam Member

Back in August 2023, my mo went to the ER for an allergy and ended up in the hospital was SVC syndrome & B cell Lymphoma. We didn't know anything about cancer, chemo side effects, or nurse navigators.

We are halfway through chemo (3rd round of R-chop), have had three hospital stays, and lots of anxiety never knowing who to call.

We just met our nurse navigator today and she was amazing. I will definitely be calling her moving forward. Navigating the hospital system is tough, so glad we have her on our side now

posted November 17, 2023
A MyLymphomaTeam Member

Yes, I have a navigator that has helped me a couple times.

posted November 19, 2023
A MyLymphomaTeam Member

That's Awesome

posted November 17, 2023
A MyLymphomaTeam Member

Very responsive through our patient portal.

posted November 20, 2023
A MyLymphomaTeam Member

Yes, but we call it something different. Anyway, she's been very helpful and I'm glad for the program ☺️

posted November 20, 2023

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