I Have NHL B Cell And Am Watch And Wait. How Cautious Should I Be, In The Watch And Wait Phase, Regarding Protection Against Infection? | MyLymphomaTeam

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I Have NHL B Cell And Am Watch And Wait. How Cautious Should I Be, In The Watch And Wait Phase, Regarding Protection Against Infection?
A MyLymphomaTeam Member asked a question πŸ’­

Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks

posted February 6 (edited)
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A MyLymphomaTeam Member

Kimberly, I was at Stage 4 when diagnosed because before my diagnosis I had Weird little things like hot flashes, felt sluggish etc for at least 5 years before being checked out, BOY!! Was I evermore shocked but now you know in time to help yourself. I started eating better, it's not fun cooking for just yourself so I had really slacked on eating correctly. I also looked up "Super Foods" and started immediately on the ones I really loved, was only taking D3 so beefed up my vitamins. One thing you should make a priority, which no more one will tell you, is get a really good oral check up, exays, fillings, gums, the works and tell your dentist why you need this and be more conscientious about your daily routine. Rest every day if only for a few minutes. I was losing hair by the handsful before I was diagnosed and then after Rituxin it was a dry, frizzy unsightly, limp horror so since you are aware, I would start now conditioning my hair and scalp. I made my own and after 3 or so conditionings I could begin to see a difference. I used and still use a blend of multiple clean oils, aloe and on and on. Left it on a varying lengths depending on my schedule. Do not push yourself and don't be afraid, you most likely have plenty of time to decompress and your Dr will keep a close watch on your blood work and what is going on each time he sees you. For me the worst part was and still is the gosh awful fatigue. There will be hills and valleys but just hang in there. The one thing that help me most when the Dr called and told me his suspicions and that I needed to see an onc. I was in total shock and my brain was like a whirling dervish. I finally just said " God, I cannot do this, I do not understand and I am giving this to you and all I ask is acceptance, calm, and peace for whatever is ahead. HE heard me and provided what I needed. I never even cried. If you need to talk let me know. I just wish you the best and please be calm and don't dwell on it. You and I have the easiest of all the blood cancers. Did you know that? Good Luck!!

posted February 6
A MyLymphomaTeam Member

Idk of anything yet that is specific. I have been told to avoid sick people and crowds. I mask up going into public places and don’t go to restaurants and other indoor areas where I would have to take off my mask. Once my body makes more bcells in a few months, I think I will not have any precautions.

posted 15 hours ago
A MyLymphomaTeam Member

Hi Kimberly! For me as far as being careful to not be exposed during a wait and see time, at 75 I made sure I got all vaccinations that my oncologist recommended: Covid, Flu A&B, Pneumonia and RSV. If I go to the grocery store or some such where a number of people are around, I mask up. Same thing for any doctor office and I stay away from movie theaters, which I've read contain more germs than the public restrooms. 😳 That was a shocker. I also traveled for the first time since 2020 from CO to FL to attend my granddaughter's wedding and to meet a 19 mo old great granddaughter I had never seen in person! We have many relatives in FL. My family in CO traveled with me to FL and the 4 of us all masked up and wiped down every place we sat with antiseptic cloths. We kept ourselves in a tight little group. Linda577 gave very good advice about a number of things, and I would add, finding your peace that "passes all understanding" is the very best thing you can do for yourself. For me that's prayer and long talks with my Heavenly Father. He has been at my side through tests and things I was fearful of. I could feel The Holy Comforter's presence when worry would try to creep in and rob me of a good night's sleep. As far as the overall "wait & see" goes, my oncology care team and one specialist that was brought in to confer on my case because of two different diagnoses - all said I don't need to go through any treatment as my cancer in my bone marrow is currently "indolent" and could remain as such for years. No reason to put me through a rough-go with chemo when it won't help me now, but instead could weaken me at my age. I'm not too old to be treated, by any means, it's just not my best plan now. If it starts to grow and gets into one or more of my 900 lymph nodes, then we act! I'm not going to get worse by waiting. Except for a few nuisances I'm basically asymptomatic. I trust my care team explicitly and I know Jesus has got this! My next steps are to now investigate a heart issue. I will be praying for you and your family. Please know how very much God loves you! πŸ™β€οΈπŸ™

posted February 7
A MyLymphomaTeam Member

Linda577 that is great advice. !!! Kimberly I would say you got it all from this helpful reply .

posted February 7
A MyLymphomaTeam Member

If you are not currently on treatment, I would focus on a healthy diet. The cancer association recommends a plant base diet. Practice meditation and have positive thoughts and lots of prayers πŸ™πŸΌ

posted February 6

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