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Bed Sores, Or Friction Sores From Socks, Waist Bands

A MyLymphomaTeam Member asked a question 💭
Winnipeg, MB

I'm in the middle of being tested and my doctors are leaning towards peripheral t cell lymphoma, I'm b symptomatic I get the night sweats and fever, flus and colds, fatigue and loss of appetite, weight loss and so forth...anyways my question is does anyone else gets these sore on their feet, legs, hips, lower back?

April 7, 2024
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Answer Summary

Members responded to someone experiencing painful sores on their feet, legs, hips, and lower back during testing for peripheral T-cell... Read more

Members responded to someone experiencing painful sores on their feet, legs, hips, and lower back during testing for peripheral T-cell lymphoma, with many questioning whether these were truly bed sores as their doctor suggested. Several members shared personal experiences with skin issues related to lymphoma and treatment, including one who developed infections after rituximab therapy that improved with acyclovir and chemotherapy, while others emphasized the importance of seeing a dermatologist or lymphoma specialist rather than relying solely on a general oncologist's assessment. A recurring theme was the need for stronger self-advocacy in navigating the healthcare system, with members encouraging the original poster to push for earlier appointments, seek specialists, and not accept generic explanations for concerning symptoms that appear in unusual locations.

A MyLymphomaTeam Member

Ouch, I hope that is not painful. I can't say that I have gotten sores except where I scratched too much due to itching (my derm says it is likely CA related but my onco says it is not related to my NHFL). I will say that at my age, I have had quite the variety of skin issues which apparently happens to many of us older folks. Different types of growths that are mostly benign - but some have turned out to be basal or squamous skin CAs. You can't always tell by just looking which are normal or concerning, I really encourage you to have a specialist do a skin check. Keep bringing it up to your Drs (and maybe ask for a referral - to a dermatologist or derm/oncologist.) I think most side effects that are bothersome but not critical tend to be put aside as the Drs focus on the more serious stuff. Also Drs tend to focus on what they know / have seen before / and just their area of expertise, So if what is causing your sores is rare or something outside their experience, you may have to seek additional help.

April 7, 2024 (edited)
A MyLymphomaTeam Member

Thank you Rebecca3 and KellyS...appreciate your insight and the wishes ..I got a few new sores one on my other foot by toe and the others are up on my leg...

April 10, 2024
A MyLymphomaTeam Member
April 7, 2024
A MyLymphomaTeam Member

Glad to hear that you aren't experiencing any other symptoms. I'm not sure where ur located or if they spoke to you yet in regards to chemo but if they do give you an option for a port catheter ---It is the best and most convenient way of infusion/Blood work etc. Sending you lots of positive thoughts and energy

April 13, 2024
A MyLymphomaTeam Member

My experiences are just loss of weight and mild fatigue Still waiting to start chemo but hav ebeen defined as Mantel cell lymphoma Other than these very mild symptoms i have no other symptoms and an very well Bob Scouller

April 10, 2024

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