I have MCL and just recently had a 3rd PET scan which showed I was significantly improved. My oncologist told me I was in remission and I was to start maintenance therapy on 6/12. I have a Doctor appointment the same day before this to explain all of this. Till then my anxiety and a new anger issue has arisen. I think I read too much and haven’t figured out what “remisssion “ means. Are they trying to keep the lymphoma from coming back or are they trying to prolong my life. Very confused and I… read more
Answer Summary
Members rallied around a question about what remission means for mantle cell lymphoma, with most describing it as having no detectable cancer... Read more
Steve my understanding is Remission / complete recovery mode is where there is no activity. Maintenance therapy is for insurance of the cancer not coming back. The factors taken into consideration are type grade etc.
Yes if you have questions by all means Ask for explanation. You must be a advocate for your health. Getting angry doesn’t bring resolution, it just upsets you. I am sorry you are dealing w this.
I used to read a lot of the stuff on line. There are some very deep dark places. You know it is best to ask your medical team members ie: oncologist. Medical Dr are helpful sure for basics. Your Oncologist knows a lot more.
After being told that the lump in my breast was nothing, I didn’t need a mammogram, And having to literally fight to be on the non urgent list. Then Wait for 6 weeks only to find I had breast cancer.
I told this Dr he should be fetching rocks at the bottom of the ocean. And fired him.
Then to be lied to by my Oncologist 2x, hearing his reasoning was unbelievable. I got rid of him as well.
I have a rock solid medical team now.
Anger messes w your mental being. 85% of beating cancer is mental.
You are in this to win, you need to have all your questions answered.
Stay strong! xx
Great news, I’m in remission 5 months. I praise God I have a 2nd chance (it damaged my kidney but I’m still not on dialysis yet). I count my blessings each day (I’ve kept track of all my life successes/consults in excel, I was a scientist. Seeing everything extra I did in life makes me feel great
remission means just that. Could it return, sure but enjoy this gift God has given you. Stop reading into things that haven't occurred. I'm 4 1/2 years into remission and never think about will it return. I just enjoy what God has given me.
From my experience ... Remission means the cancer is inactive. The maintenance keeps it that way AND prolongs life. Hope this helps 😁
i was just at my oncologist last week and was thinking about the question you posed, and I asked him. Remission means there is no detectable cancer in your body according to him. So, like I said earlier, enjoy this gift God has given you with this second chance at life. BTW, I'm still in remission and the doctor says if I make it to 5 years it probably will never come back. Praise God!