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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Which Lymphoma Symptom Surprised You The Most?

A MyLymphomaTeam Member asked a question 💭
San Francisco, CA
August 21
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A MyLymphomaTeam Member

My first symptom was a slightly enlarged lymph node in my right groin. I thought it was infected. By the time I got to the doctor a month later, it had grown. CT scan, biopsy, and PET confirmed NHL DLBCL. Very active and never seriously sick in my life. Went from no cancer to stage 4 in 60 days. In my lymphatic system, liver, backbone, and bone marrow. 6 rounds of RCHOP worked. In complete remission in 6 months. But a PET 6 months later showed I relapsed. So my oncologist referred me to CAR T-cell therapy. 3 months later, PET showed it was working mostly, so “almost in complete remission.” In about 10 days I get another PET to see if the cancer is completely gone. I’m eager to get the results. I had complications from CAR T-cell infusion but it worked. Never give up hope.

August 30
A MyLymphomaTeam Member

Probably the night sweats. I had them months before I could feel the enlarged lymph nodes in my neck. I was clueless at the time.

August 21
A MyLymphomaTeam Member

The bouts of intense sweating and fatigue. Originally it was only at night, but now it can happen any time. I'm hot and sweating, then freezing. The sweating in public is embarrassing- flushed face with sweat dripping down my face.

August 21
A MyLymphomaTeam Member

All these symptoms I have. The lymphoma is in my bone marrow. I’ve been told I’m in remission last 5 years. I’m just tired. Here’s wishing peace and comfort to all. Thanks for listening.❤️🐩

August 23
A MyLymphomaTeam Member

oh goodness... horrible itching with nothing there. unbelievable night sweats.

August 22

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