Has Anyone Here Been Put On Bispecific Antibodies As A Treatment For DLBCL?
It might be quite niche but I am now on this after unsuccessful CAR T therapy. Would like to hear people's experiences of it?
I hear that Chris, we are all genuine guinea pigs and having put myself up for medical research treatments which I am obviously praying that the meds work furthering the cause of fighting this and other disease which is important to me.
I hope your journey is success_full
Thanks Barb, I'm actually quite optimistic for this treatment. The more I read about Bispecifics the more I think they have at least as much potential as car t as a third line treatment. It's very new so it's hard to find info but it also has a lot of advantages (for example it's an off the shelf treatment so doesn't need weeks and months of being tailored to the patient in a lab, you just inject it and it starts working).
I like that it's new also because I feel my treatment, even if unsuccessful, will help doctors understand the treatment better and can adjust and improve for those that will get this after me!
Hi Chris, I recently came across a YouTube clip in which discussed in details about using bispecific antibodies Lymphoma. Hope you can find it helpful. The discussion started at 8 minutes mark.
https://youtu.be/JnEwIzSk5fE?si=ZN1DOqsuP0tUHyx1
Hi Chris, I wish you all the success in the world. I hope this works. That's all any of us can do is keep trying. I've not heard of this. I would like to know more about it and they're doing so much now you're right about the therapy being right for you just keep the good positive vibes up you're in my thoughts and prayers!🤗
Thanks Lynda, I'm on Epcoritamab which is allowed in the UK as a third or fourth line treatment.
I had a rough start with Cytokine Release Syndrome after my first couple of doses but things have settled down now.
I don't know if it's working or not but my disease doesn't feel like it's progressing at the moment which is encouraging!
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