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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 1, 2025
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Answer Summary

Members discussed the emotional challenges of watch-and-wait approaches for lymphoma, with some sharing that waiting allowed time for better... Read more

Members discussed the emotional challenges of watch-and-wait approaches for lymphoma, with some sharing that waiting allowed time for better treatments to emerge while others expressed frustration with unclear communication from doctors and the anxiety of monitoring without action. Several members emphasized the importance of timing treatment for the best long-term outcomes, noting that first treatments often yield the longest remissions and advocating for second opinions at major cancer centers when clarity or compassion is lacking. A recurring theme was the exhausting weight of managing cancer alongside life's other struggles, met with deep community support, prayers, and celebration of small joys like kind neighbors and finding a sense of home.

A MyLymphomaTeam Member

I have a friend who was on watch and wait for 10 yrs. She hated it and worried too much, but in that time new drugs are used that might be better. After my 1st treatment I had 14 yrs of remission. I was treated 3 yrs ago again for the 2nd time, my next remission might be only about HALF of that time, and the next one shorter YET. Next one might be in 4 yrs, again, maybe I should have waited longer the 2nd time. My main complaint then was, I was never hungry and it was affecting my stomach. Now I could eat constantly. Give it the best strongest shot the 1st time and hope it's the last one you need.

April 1, 2025
MyLymphomaTeam

Watch and wait is a common approach for nonaggressive (indolent) lymphomas where immediate treatment may not be necessary. During this time, your condition is regularly monitored through blood work every 3-6 months and follow-up visits, rather than starting treatment right away.

This approach helps avoid unnecessary side Show Full Answer

Watch and wait is a common approach for nonaggressive (indolent) lymphomas where immediate treatment may not be necessary. During this time, your condition is regularly monitored through blood work every 3-6 months and follow-up visits, rather than starting treatment right away.

This approach helps avoid unnecessary side effects from treatments like chemotherapy while maintaining your quality of life. Your doctor will monitor specific indicators to determine when treatment should begin, including changes in lymph node size, blood cell counts, and new symptoms. It's completely normal to feel anxious about not starting treatment immediately. However, studies have shown that for many cases of indolent lymphoma, there's no benefit to beginning treatment earlier. Your doctor will recommend starting treatment if they see concerning changes in your symptoms, blood work results, increased swelling in lymph nodes, or signs that the cancer is spreading.

If you're feeling uncertain, it's important to ask your doctor to explain their reasoning and what specific changes they're monitoring. Consider asking about which symptoms you should watch for and what lifestyle changes might help you feel your best during this time.

April 1, 2025
A MyLymphomaTeam Member

Gena2, I have LPL too. Had Immunotherapy at diagnosis.

April 1, 2025
A MyLymphomaTeam Member

Gena it is about the most appropriate time for the best results & no side effects with less chance of relapse.

April 1, 2025
A MyLymphomaTeam Member

I have CD5 small Bcell Leukemia & lol lympoplasmastic lymphoma

April 1, 2025

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