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June 5, 2025
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A MyLymphomaTeam Member

Dan22 wow and woaw!
That is my issue with Watch and Wonder (not wait in my opinion).
I am hyper aware of my body and notice small changes so I wonder alot. I do not worry or overreact but I just wonder if something will me missed turning it is Watch and Opps-WonderedTooLong.
So sorry your cancer advanced and so happy you found it. Why did you need surgery? Ik most NHL cancers do not have surgery.
Take care.

June 11, 2025
A MyLymphomaTeam Member

I was on Watch and Wait for 4 years and 4 months. All of a sudden I had 3 lumps come out different places, went to my regular doctor and he said it was cyst and sent me to a surgeon to get them removed and sent in for testing. It came back they were Diffuse Large B Cell Lymphoma and aggressive.
I have had 3 chemo treatments and another due Thursday June 12, 2025.

June 8, 2025
A MyLymphomaTeam Member

Wait and watch is a double-edged sword in my opinion. How often are you having scans? A mistake my team made in my case was not performing a PET scan to detect the metabolic activity inside the tumor, to ensure it was not transforming into DLBCL and remained stable. Chances are low, like 1 in 100, but it happens, and then it's a very different ball game. I ended up having a major surgery because of it.

June 10, 2025
A MyLymphomaTeam Member

Oh no! Glad you went to the doctor.. what kind of NHL was your original cancer that placed you on Watch and Wait?

June 9, 2025
A MyLymphomaTeam Member

@A MyLymphomaTeam Member While I appreciate, and did use natural healing methods, please do not scare people into believing that chemo, and/or other medical treatments, should be avoided! This is very dangerous and could lead astray patients who will die because of NOT seeking medical treatment. I am a strong believer in God and ALL He created, INCLUDING brilliant doctors, researchers, and medicines. The two MUST exist together.

September 23

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