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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyLymphomaTeam Member asked a question 💭
Daytona Beach, FL
June 9, 2025
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A MyLymphomaTeam Member

I will jump in here because I am scheduling Car T at the end of August. Even though the medication is working the oncologist suggests I am currently a good candidate now instead of waiting until the medication stops working. I am 76 and in decent shape but I am concerned about side effects. My prayers are with you all

June 19, 2025
A MyLymphomaTeam Member

Thank you as I am concerned about the hospital stay and side effects

June 17, 2025
A MyLymphomaTeam Member

I underwent a CAR-T donor Phase 1 trial last year.
I didn't have too many side effects.
Rashes on lower back and wrists - the rash on my lower back was large and looked like someone had smacked me with a yard stick!
My liver played up just a little bit, so I was given Ambisone infusions a few times.
Otherwise, just the usual aches and pains that go with any of our treatments.
Unfortunately for me I only had a 2 month remission (and I would say that's questionable given how quickly the lymphoma spread in that time).
Now waiting on a transplant, but this has been pushed back a month as I've come down with influenza a!

June 20, 2025
A MyLymphomaTeam Member

Hi Bill my Brusinsa and Rituxin failed after two years. Hope you get better results My prayers are with you.

June 20, 2025
A MyLymphomaTeam Member

Bruce I also have MCL am 77 years old . I had discussions about CAR T with the doctor and all of the side effects. I chose not to get it and am sticking with Brukinsa and Rituxan regiment. I have a scan scheduled for July 9th and the results will help make me rethink my decision .

June 19, 2025

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