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A MyLymphomaTeam Member asked a question 💭
Chico, CA
June 30, 2025
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MyLymphomaTeam

Yes, lymphoma and neuropathy are directly related. Lymphoma can cause neuropathy in several ways:

• Lymphoma cells can grow inside the nerves
• Tumors can press against nearby nerves
• The disease can trigger an immune response that attacks nerves

People with Non-Hodgkin Lymphoma (NHL) are more likely to experience Show Full Answer

Yes, lymphoma and neuropathy are directly related. Lymphoma can cause neuropathy in several ways:

• Lymphoma cells can grow inside the nerves
• Tumors can press against nearby nerves
• The disease can trigger an immune response that attacks nerves

People with Non-Hodgkin Lymphoma (NHL) are more likely to experience neuropathy as a symptom compared to those with Hodgkin Lymphoma. Additionally, lymphoma treatments, particularly chemotherapy, can cause neuropathy. About 30-40% of people develop chemotherapy-induced peripheral neuropathy (CIPN). Common symptoms include:

• Pain and tingling in hands and feet
• Difficulty with coordination
• Muscle weakness
• Trouble with daily tasks like buttoning shirts
• Changes in temperature sensitivity

While neuropathy symptoms often improve after treatment ends, some people may experience longer-lasting effects. It's important to notify your doctor if you develop or experience worsening neuropathy symptoms.

June 30, 2025
A MyLymphomaTeam Member

Thank you so much for your kind words. His oncologist luckily wasn't in for his final chemo session because we ended up getting a different oncologist that day who was the first and only person to actually show us any scan results and also made the decision to cut back on one of the chemo drugs that is directly connected to neuropathy. I believe if we had gotten the regular oncologist that day she probably wouldn't have changed a thing. He goes to the Cleveland Clinic which is supposed to be the best cancer Clinic in the world however you do feel like just a number there. We are still left with a lot of questions about a lot of things because our visits felt very rushed and redundant. Gary wants to know if you experience any neuropathy at all during or after your art treatment. Congratulations on your remission. That is a wonderful thing, and i hope that it stays that way for many years to come. ❤️

July 6, 2025
A MyLymphomaTeam Member

MandyGreene,
Hi and welcome to the site. I have/had DLBCL stage IV and had treatments of RCHOP chemo too. I totally understand. I've been in remission for 4 years. Im so sorry your boyfriend is having neuropathy. Has he reached out to his oncologist in regards to this matter? I believe there is medication that can help with this. I know it's frustrating but try to hang in there. For me the chemo was worth it. I know how tough it is though to go through this. Congratulations on finishing! That's a big deal!! I get it. Good luck on his scan. I hope all turns out well for him and you also. I'm here if you have any other questions. We're all here to support the both of you too. Kelly

July 1, 2025
A MyLymphomaTeam Member

My boyfriend is currently experiencing neuropathy in his feet to the point that walking is hard for him. I have to hold him as he goes up our stairs, and he's fallen 4 times within a month or so. He's also experiencing neuropathy in his hands to the point that he can't even open a zip lock bag.

It's so hard to watch him go through all of this. It is starting to feel like the chemo did more bad than good, because before he started treatment he was fine, except for a severe pain that ran down from his neck onto his arm and hand. However, that pain is the only reason we found out about the lymphoma. We were told by multiple doctors that it was just a pinched nerve, so to find out it was cancer; was a shock to say the least.

But back to what I was saying before; Gary was his normal self except for the tumor causing that pain in his arm. No symptoms of cancer whatsoever. Now that he's received the R-CHOP (the red devil) his quality of life has suffered severely.

He just completed his sixth and final round of chemotherapy, and is due for his final PET scan in about a month. I pray to God he shows significant progress because we both don't think his body can handle another round of chemo (poison).

I'm giving this site a chance, in hopes that it will help us in any way. Even if it's just a little hope, we'll take it.

Amanda

July 1, 2025

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