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A MyLymphomaTeam Member asked a question 💭
July 14, 2025
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MyLymphomaTeam

Central nervous system (CNS) lymphoma can affect the spine, though it more commonly occurs in the brain. There are two types:

1. Primary CNS lymphoma - starts directly in the brain or spinal cord
2. Secondary CNS lymphoma - spreads from lymph nodes in other parts of the body to the spine When lymphoma spreads to bones, it Show Full Answer

Central nervous system (CNS) lymphoma can affect the spine, though it more commonly occurs in the brain. There are two types:

1. Primary CNS lymphoma - starts directly in the brain or spinal cord
2. Secondary CNS lymphoma - spreads from lymph nodes in other parts of the body to the spine When lymphoma spreads to bones, it most commonly affects the spine first. This is called bone metastasis and can cause varying levels of pain that may:

- Fluctuate throughout the day
- Improve with exercise
- Worsen at night
- Become more constant as the condition progresses

July 14, 2025
A MyLymphomaTeam Member

Pamlsaia,
Hi and welcome to the website. Everyone on here is so kind, supportive and helpful. I have/had DLBCL stage IV and had treatments of RCHOP chemo. I've been in remission for 4 years. I hope you have a blessed day. Kelly

July 19, 2025
A MyLymphomaTeam Member

Thanks for your reply. That helps me understand more what’s going on and I appreciate it. I’m glad to hear you’re in remission.

July 18, 2025
A MyLymphomaTeam Member

My follicular lymphoma transformed to Diffuse large B cell and metastasized (spread) to the spine. First symptom was back pain and then I went numb from the waist down due to mass occluding my spinal cord. I had radiation and then RCHOP. Then I had a stem cell transplant which didn't work and then CAR-T which did work. I'm in remission now.

July 14, 2025

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