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I have Waldenstroms and in the “watch and wait” period. I am doing well except for the endless respiratory infections etc.

July 18, 2025
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A MyLymphomaTeam Member

Hi Francie…I have had IVIG infusions several times but not on a regular basis, just when I needed a boost to my immune system to fight something! They worked for me and I am so thankful that it is available! I had CarT immunotherapy 4 years ago!
Did not have any bad side effects…it was like a magic med for me!
I’m sure it will work for you too!
We are so fortunate and blessed to have all these meds to help us!

July 21, 2025
MyLymphomaTeam

During the watch-and-wait period with Waldenstrom's macroglobulinemia (WM), it's crucial to attend regular follow-up visits and blood work every three to six months. The recurring respiratory infections you're experiencing could be related to your changing blood cell levels, which is an important factor your doctor Show Full Answer

During the watch-and-wait period with Waldenstrom's macroglobulinemia (WM), it's crucial to attend regular follow-up visits and blood work every three to six months. The recurring respiratory infections you're experiencing could be related to your changing blood cell levels, which is an important factor your doctor monitors. Low levels of healthy blood cells can be a sign of disease progression in WM. Your doctor is likely monitoring your immunoglobulin levels carefully, as these proteins play a key role in your immune system's ability to fight infections. It's important to report any new symptoms to your healthcare team, as this helps them determine if and when treatment should begin. Remember to stay in close communication with your healthcare team throughout this process. They can best determine when to transition from watchful waiting to active treatment based on your specific symptoms and blood work results.

July 18, 2025
A MyLymphomaTeam Member

Had my second IVIG infusion this week. Wiped out for 24 hrs diarrhoea and flu symptoms. Scheduled for third in a months time. Trusting that bloods will show an improvement in my antibodies.

June 17
A MyLymphomaTeam Member

I am eating a plant based diet… have for years. Yes, it does help I think. Anyway, it’s definitely good for you. Thanks for responding and glad you like my town. I do too.

July 24, 2025
A MyLymphomaTeam Member

I love your town❤️. Eat immune building foods. Plant based whole foods. There is healing power in this.

July 24, 2025

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