Hi Karen --- I don't think there are subtypes of Classic Hodgkin lymphoma, which makes up 90% of all HLs. The other 10% is the type of HL that I have. I have a CT scan scheduled for next week. It's been 1 year since my last one. The longest I have gone in between scans was 2 years.

Are you participating in the Lymphoma Research Foundation's online program this weekend? There's always a breakout session on Hodgkin Lymphoma, but they say very little about my subtype. I guess that has its pros and cons.

Thank you for responding to my question. I had Classical Hodgkins Lymphoma....no sub type was mentioned in the diagnosis. I've been in remission for almost 6 months. A November CT Scan is my next hurdle. I'm glad that I'm in remission but these Scans seem to put a damper on my joy! I feel like I'm waiting for the next shoe to fall. I want to be happy but this nagging uncertain feeling seems to pop into my mind unexpectedly. I've read that you're not cured until 5 yrs.have passed with no signs of cancer Maybe that's my problem....I read too much.

Hi Karen - Immunotherapy was my 1st line of treatment. I have not needed chemotherapy so far. I have a Hodgkin lymphoma - subtype is Nodular Lymphocyte Predominant HL & is very rare. The first oncologist I saw considered radiation only; however, the radiologist oncologist advised against radiation because of the location of the infected lymph nodes. He believed my organs would have been negatively impacted, causing future problems. The second opinion I received was for 6 rounds of chemo (R-Chop); however, that oncologist had never treated my subtype, and I was skeptical about having toxic treatment that was not necessary. The third opinion advised immunotherapy only since Rituxan targets the CD20 protein on the surface of the infected B-cells.

I was also VERY fortunate in that my only symptoms were fatigue, mild fevers and morphea (a localized scleroderma - resulting from the lymphoma). I felt well enough to take the extra time to seek additional opinions.

Wishing you the very best through this unexpected journey!

Thanks for answering my question. I take it that you were in remission and then cancer resurfaced. Can you tell me what happened and how you decided on immunotherapy?
Thanks again for your reply.

I did in 2016 and am on Watch/Wait since then. I have been very fortunate!