Thank you for your input Zannie, much appreciated.
I really value the true life experience that we as members share on this forum.
Kindest regards, Rhonda4 🤗

Hi from Toronto! I had dlbcl too and while it started with finding a tumour in the lining of my brain which was surgically removed I also had a tumour in the hip-pelvic area that was treated with chemo and radiation. I had been telling my family dr I had hip pain so severe I couldn't sleep on my right side and she was telling me to run a ball up and down my right side. The tumour left lesions in the bone there. Have they done scans of the areas causing you pain?

Hi Rhonda, I am 5 months into remission from Stage 4 DLBCL. One femur's marrow was shot and outside of the bone had a large lesion (kidneys & some nodes too). While not severe, leg pain persists at the site of lesion and shooting nerve pain. The actual pain is not so bad, but nonetheless unnerving. I wonder if the worry of recurrence ever subsides. I feel your pain: literally and figuratively. Best, Zannie