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Low IgG levels

A MyLymphomaTeam Member asked a question 💭
Frisco, TX

Has any experienced low IgG levels after treatment, and if So has your oncologist talked to you about IVIG treatment, where you receive gammaglobulin
Apparently my immune system isn't doing so great, I just it doesn't help that I also don't have a spleen
I have a bunch of neurological symptoms as well, and my oncologist always says I have MS, or CIDP, maybe Guillain-Barre, whatever that is, I have had an appointment scheduled with a specialty neurologist since September and my appointment is… read more

November 26, 2025 (edited)
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Reactions
A MyLymphomaTeam Member

Thank you Mary, I am already on the cancelation list.

November 26, 2025
A MyLymphomaTeam Member

Can you reach out to the neurologist's office and ask them to call you if an appointment comes available prior to January 21st? That's a long time to wait to try to get answers.

November 26, 2025
A MyLymphomaTeam Member

I have just been gaslit by over 3 neurologists and a Rhumatologist but, I list she sent my oncologist notes (after spending 3 minutes with me) the Rhumatologist told me all my symptoms are in my head and that IVIG will do nothing to help me actually and I am experiencing a placebo effect, eventhough I cleary have a golden week in between my IVIG infusions. I stopped them after that Rhumatologist appointment, but she told my oncologist I have fibromyalgia and a possible connective tissue disorder. ( My oncologist is taking or trying to take over and find me a specialist for my numb eyes, a neurologist/eye specialist and someone who deals with connective tissue disorders like EDS, and POTS, because I have high heart rate spikes when I stand and I have hyper extension in my joints. My cardiologist just told me to try electrolyte drinks, but it just made my BP high all the time so I stopped ✋️ I don't understand why it should be so hard to get a tilt table test, I hate Doctors 🙃😅 Anyway...that's my rant, and Update...still have a headache and numb eyes, and various other issues, but my CT scan from last week was at least clear in the ER

I just want a proper diagnosis. They don't have to complete a miracle for Pete's Sake!

Exhausted
Sarah

P.S. I also found out my SSN was stolen and I have made a police report and all that, trying to get it sorted before they put it on my credit report, I can't believe that while I was getting chemotherapy and immunotherapy back in 2024-2025 someone was pretending to be me to get some Utilities...shameful.

August 22
MyLymphomaTeam

Are low IgG levels and neurological symptoms common after lymphoma treatment?

It's understandable to feel frustrated waiting for answers, especially with everything you're experiencing. Low immunoglobulin levels, including IgG, can happen after lymphoma treatment because both the disease and treatments like chemotherapy Show Full Answer

Are low IgG levels and neurological symptoms common after lymphoma treatment?

It's understandable to feel frustrated waiting for answers, especially with everything you're experiencing. Low immunoglobulin levels, including IgG, can happen after lymphoma treatment because both the disease and treatments like chemotherapy can weaken your immune system. Not having a spleen makes this even more challenging since it's an important part of fighting infections.

Many members on MyLymphomaTeam have shared similar experiences with low IgG levels after treatment. Some have received IVIG (intravenous immunoglobulin) therapy to help boost their immune system when levels stay dangerously low or if they're getting frequent infections.

Neurological symptoms like the electrical shooting pain you described can sometimes be related to peripheral neuropathy, which is nerve damage that can occur from certain lymphoma treatments or from the disease itself. The symptoms vary depending on which nerves are affected - sensory nerves (feeling sensations), motor nerves (controlling movement), or autonomic nerves (controlling automatic body processes). What should you discuss with your doctors?

When you see the neurologist on January 21st, bring up all your symptoms including:
- The electrical shooting pain when you sneeze
- Any other neurological symptoms you're experiencing
- Your treatment history and low IgG levels
- The fact that you don't have a spleen

It's important to tell your healthcare team about all conditions you're experiencing, as this can impact your treatment options. Your oncologist can also assess whether IVIG treatment is appropriate based on your IgG levels, infection history, and overall health status.

The wait for answers is exhausting, but seeing the specialist is an important step toward understanding what's happening and getting the right treatment.

November 26, 2025

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