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Hi there, my name is Christine and my mom has been fighting Follicular Lymphoma. She has been experiencing severe body pain.

A MyLymphomaTeam Member asked a question 💭
Waynesboro, PA

Yesterday she woke up and could stand right away. Took her to emergency room and found nothing. We had 8 consecutive treatments and now doing every 56 days of immunotherapy. Could this treatment cause this kind of side effect? We can’t seem to get any answers. The pain in her body is debilitating. Please help

April 15
 · 
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A MyLymphomaTeam Member

ChristineLehman,
Hi and welcome to the site. Everyone here is so nice and kind. I have/had DLBCL and had treatments of rchop chemo. I’ve been in remission for 5 years. I hope your mom is feeling better today. Kelly

April 15
MyLymphomaTeam

Could immunotherapy be causing your mom's severe body pain?

Yes, immunotherapy can cause significant body pain and aches. Common side effects of immunotherapy include body aches, muscle pain, fatigue, and flu-like symptoms that can be quite debilitating.

Some immunotherapies can also cause more serious reactions like Show Full Answer

Could immunotherapy be causing your mom's severe body pain?

Yes, immunotherapy can cause significant body pain and aches. Common side effects of immunotherapy include body aches, muscle pain, fatigue, and flu-like symptoms that can be quite debilitating.

Some immunotherapies can also cause more serious reactions like cytokine release syndrome, which can feel like a sudden and intense bout of the flu with severe body aches. Additionally, immunotherapy can cause inflammation in various organs including the lungs, colon, thyroid, kidneys, and liver, which could contribute to pain. It's also worth noting that pain can result from the lymphoma itself or from other treatment-related issues. Some people experience:

* Joint and muscle pain from the disease
* Nerve pain (peripheral neuropathy) from treatments
* Bone pain from medications that boost white blood cell counts

A MyLymphomaTeam member shared: "I have joint pain most days of the week. It feels like I have walking mono."

Since your mom's pain is severe enough that she couldn't stand, and the ER didn't find an immediate cause, it's crucial to follow up with her oncology team right away. They need to know about this debilitating pain so they can determine if it's treatment-related and adjust her care plan accordingly.

April 15

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