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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I would like to know how many of you had a relapse within 2years of your original treatment?

A MyLymphomaTeam Member asked a question 💭
Ione, CA

My first treatment was Rituxan infusions and radiation on left side of my face. Now my lungs are bad and discussing options.

May 11
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Reactions
A MyLymphomaTeam Member

Thank you I will

May 13
A MyLymphomaTeam Member

Aw, bless you. You have a lot of uncertainty around your treatment plan.
I would be reeling too, if it were me.
Sending you a hug and positive vibes Teri5.
Keep us posted about how you get on.
Thinking of you
Dawn. 🤗

May 13
A MyLymphomaTeam Member

Oh my gosh! I am great compared to what you have endured. I am just really frustrated. I was originally treated with Rituxan and radiation on entire left side of face/head for parotid tumors and the lymphoma had infiltrated the side of my head and was in my lungs and other parts of my body. I was originally treated at Mayo in Arizona I since moved back to California. It’s been two years and now my PET scan shows my lungs are the issue. My oncologist wants a lung biopsy however the thoracic surgeon is not comfortable doing it. Which leaves us in a predicament do we start a treatment plan not knowing if it has turned into a more aggressive lymphoma. I meet with my oncologist today actually to discuss what the options are. I just find it difficult to put my complete faith and trust in a Dr and I usually go with my gut but it isn’t guiding me in this case

May 12
A MyLymphomaTeam Member

Hi Teri5, since early 2023 when I was diagnosed and treated for Waldenstrom's macroglobulinemia, I've relapsed 4 times.
I'm now on my fifth time, having treatment for DLBCL.
I'm being treated with Pola-Br this time round, having had RCVP, RCHOP, MATRIX, Whole brain radiotherapy, and a single mastectomy.
It's been pretty tough going at times, but I'm still here. 🙃😀🤪😜.
How are you coping?
Kind regards,
Dawn. 😊

May 12
MyLymphomaTeam

That sounds like a really tough road, and it's completely understandable to have questions about what comes next. Many MyLymphomaTeam members have shared similar experiences with relapse after initial treatment.

Research shows that relapse within two years is more common than many people realize. Here are some key Show Full Answer

That sounds like a really tough road, and it's completely understandable to have questions about what comes next. Many MyLymphomaTeam members have shared similar experiences with relapse after initial treatment.

Research shows that relapse within two years is more common than many people realize. Here are some key statistics:

- About 1 in 3 people who achieve complete response after first-line treatment relapse within two years
- Early relapse (within two years) can sometimes mean the lymphoma is more aggressive
- Those who relapse early often need more intensive treatment options The good news is that there are several treatment options available after a relapse, including:

- Different chemotherapy combinations
- CAR T-cell therapy
- Bone marrow transplant
- Clinical trials offering newer therapies

Your oncology team will tailor recommendations based on your previous treatment history. It's worth asking specifically about clinical trials, as they can open doors to cutting-edge options. Wishing you strength as you navigate these conversations with your care team. 💙

May 11

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