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June 7
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MyLymphomaTeam

Paraneoplastic sensory ganglionopathy is a rare condition, so it's not surprising that finding others with the exact same experience can feel isolating. While specific data on this condition in follicular lymphoma is limited, paraneoplastic syndromes in general are more common in lymphoma than many people realize.

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Paraneoplastic sensory ganglionopathy is a rare condition, so it's not surprising that finding others with the exact same experience can feel isolating. While specific data on this condition in follicular lymphoma is limited, paraneoplastic syndromes in general are more common in lymphoma than many people realize.

Paraneoplastic syndromes occur when the immune system, in response to lymphoma, mistakenly attacks healthy cells — including those in the nervous system. They can develop in up to 20% of people with lymphoma. Symptoms linked to paraneoplastic syndromes affecting the nervous system can include:

- Weakness
- Loss of coordination or sensation
- Neuropathy (nerve damage)
- Dizziness
- Slower reflexes
- Difficulty with speech

The good news is that treating the underlying lymphoma can help manage these syndromes. Other treatment options may include corticosteroids, immunosuppressants, or intravenous immunoglobulins.

It's really important to keep your oncology team closely informed about any neurological symptoms, as prompt treatment can make a meaningful difference in outcomes.

June 7

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