Get your own second opinion with a lymphoma specialist. I went to MDANDERSON in Houston for mine. I did immunotherapy not as harsh as chemotherapy and I worked right thru it for 18 months and now my last two Pet Scans have been cancer free. You have choices. You are your own advocate.

Hi, we’re in the UK too and have great doctors. Although my husband was diagnosed in September last year with st4 MCL and was really, really ill, he’s had 6 rounds of Rituximab combined with something else (can’t remember what though), as he has a heart condition, they chose to not go with a more aggressive treatment. Then he had a PET scan to be followed by bi monthly maintenance. The PET scan was good but maintenance failed after 1st round and he was nearly back to the start again. He’s now on Brusinka (spelt incorrectly) 4 tabs a day. He’s ok, very tired but we look forward to every day. At the beginning it was emphasised that they won’t be able to cure his mantle cell lymphoma but they’re trying to keep it under control. Your friend is very lucky to have you in their corner. Both of you take care, lots of rest, any pain, hot water bottles help immensely and good luck finding another team. They can insist that they’re referred to a larger (maybe teaching) hospital. Do a bit of research and find one in a city near to them? Good luck. X

Hello Eileen , thank you for answering. Unfortunately we are living in UK and keep asking the Hematology doctors for a referral to another hospital and they declined with the reason there will be just the same , no different treatment. My friend decided to stay at home and don’t go for chemotherapy. In the main time we are struggling to find a private doctor quickly.