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Diagnosed with mal recent report from specialist said mantle cell b cell lymphoma non Hogkins lymphoma. No lymph nodes yet found on scans no spleen problems specialist said slow growing 6 months ago of last few months bone pain hot sweats and frequent diarrhoea.
Hi Mar 3- I am originally from W.A and briefly Wodonga in Victoria- relocated to Thailand 15 years ago and currently have partial remission from NH Follicular Lymphoma.
I understand specialist medical care in regional Australia can be be non existent or difficult to find- hope you can find someone to put your trust into.
My source of care is 100 km from home but is very good.
Good luck with everything and stay as positive as you can.
Cheers
Graeme
Thank you it’s so confusing the amount of reports each one differing however my new GP made it clear the specialist note mcl b cell nhl with new symptoms. It’s been awfully hard without a haematologist here we now have one it’s going to take a couple of months to get an appointment however the positive we have one. Our system over here in regional centres is falling apart and it’s a severe lack of doctors. I reach out a lot here and thank you for the resources
Mantle Cell Lymphoma (MCL) is a rare type of Non-Hodgkin Lymphoma (NHL). It starts in white blood cells called B cells, which normally help your body fight infection. These B cells sit in a part of the lymph node called the "mantle zone" — hence the name.
In MCL, a genetic change causes these B cells to grow out of Show Full Answer
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