I had palliative care when I was being treated for Lymphoma. I highly recommend it. I had a Nurse Practitioner. She reviewed my medication. Answered all my questions, provided any durable medical equipment needed. She also was able to help with pain medication.
July 8
Yes, many people with lymphoma work with palliative care teams to manage side effects and chronic pain — and it's more common than you might think! Palliative care is not the same as hospice care. It can be used at any stage of lymphoma, alongside your regular treatment.
A palliative care team can help with things like:
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Yes, many people with lymphoma work with palliative care teams to manage side effects and chronic pain — and it's more common than you might think! Palliative care is not the same as hospice care. It can be used at any stage of lymphoma, alongside your regular treatment.
A palliative care team can help with things like:
- Fatigue and low energy
- Nausea and vomiting
- Chronic pain, including bone pain
- Emotional and mental health support
- Practical support like transportation and treatment planning MyLymphomaTeam members have shared positive experiences with palliative care. One member encouraged another dealing with extreme nausea to "ask for a referral to a palliative care team," clarifying it's focused on symptom relief, not end-of-life care.
The team can include a range of specialists such as:
- Nurses and social workers
- Registered dietitians
- Physical therapists
- Massage therapists
- Psychiatrists
Talking to your oncologist about a palliative care referral is a great first step. Some costs may be covered by insurance, including Medicare.
July 4
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