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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 14
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A MyLymphomaTeam Member

You need to have a DR / Oncology team, who will gather all your tests and scan results, then interpret them together to devise a treatment plan to discuss with you. If you don’t get appropriate treatment, dancing at top level will be the least of your issues. Right now, focus on getting a complete diagnosis and treatment plan options. The chemo I received was a cocktail of 5 different drugs. I received an infusion every 3 weeks that last 5 to 7 hours. It knocked out cancer in several areas of my body. You may want to get a second opinion. YOU need to spend time online looking up and reading everything you can find on your illness. so you understand your condition, your options, what treatments are available, what clinical trials are available, what the side effects are, treatment time line / durations and odds of success. It’s easier to look up information today because of AI. Use it and save or print out results. You need to also understand your insurance and any possible limitations. Ask the Clinic or Hospital where you were treating for a case manager.. You have to consider everything to make an informed decision for your healthcare and a better future. Sometimes I think that life and the obstacles thrown in front of us are all a big test… of our endurance, patience, resilience and willingness to adapt. This is just another obstacle in your path that you can overcome. It’s always going to be your choice how you decide to handle it. But first you need a complete and comprehensive diagnosis with a treatment plan
Let me know what happens
xoxo Theresa

July 14
A MyLymphomaTeam Member

You need to talk with your oncologists and ask questions related to your current health diagnosis.. Make a list. Bring someone with you. Even though there are similarities with each type of cancer, cancers manifests and affect each person differently. . It’s very personal disease.. I had FL and was diagnosed with stage IV DLBCL. I went into an early remission with RCHOP chemo. I am 57 months in complete remission. Stage 4 can be highly treatable. Try to stay positive. Sending you hugs and hope .. Theresa

July 14
A MyLymphomaTeam Member

Honey, whatever you decide, keep your faith and be determined to enjoy life each day. A good attitude will help you in whatever you decide.
I will say a special prayer just for you. ❤️

July 18
A MyLymphomaTeam Member

Thank you , just to add insult to injury I spoke to pulmonologist today and she’s said all auto immune test back back negative so I have now lymphomaproiferative disease in lungs which I guess males it now stage 4 and grade3 . Really don’t feel like going through treatment again. It was hard enough last time I only rutaxibab, found it hard to keep dancing at top level .

July 14
MyLymphomaTeam

What stage and prognosis does grade 3 follicular lymphoma (FL) carry when it has spread to the lungs after returning 6-8 months post-treatment?

When FL is found outside the lymph node system — such as in the lungs — that typically indicates Stage 4 disease. Stage 4 means the lymphoma has reached at least one organ beyond Show Full Answer

What stage and prognosis does grade 3 follicular lymphoma (FL) carry when it has spread to the lungs after returning 6-8 months post-treatment?

When FL is found outside the lymph node system — such as in the lungs — that typically indicates Stage 4 disease. Stage 4 means the lymphoma has reached at least one organ beyond the lymph system. Regarding grade, grade 3 FL is further divided into 3A and 3B:

- Grade 3A is still considered low-grade and slow-growing
- Grade 3B is high-grade and grows more quickly, often requiring more aggressive treatment

Knowing which sub-grade applies is important, so it's worth confirming with the care team. As for prognosis, relapsing within 6-8 months after treatment is something the oncology team will take very seriously. At Stage 4, more intensive treatments may be considered, including bone marrow transplant or newer immunotherapy options.

Overall survival rates for FL have been improving with newer therapies, and many people do achieve remission — though relapse can happen. Regular communication with the care team is really key here.

This is a complex situation that absolutely warrants an urgent, detailed conversation with a lymphoma specialist. A second opinion on the pathology results could also be really valuable.

July 14

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New Hampton, NH