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Just been diagnosed with CTCL, CUTANEOUS T Cell non Hodgkin lymphoma. Had it for 20 years, in the last year it seems to gotten worse.

A MyLymphomaTeam Member asked a question 💭
Sarasota, FL

Been trying to find a place close to Sarasota, Fl to get NBUVB light treatments and finding it impossible. No one seems to be doing it anymore in my area. Any thoughts would be helpful.
I am a Moffitt patient in Tampa.

September 17
 · 
Reactions
A MyLymphomaTeam Member

I am hoping not to have to drive one and a half to two hours away twice a week.

September 17
MyLymphomaTeam

Living with CTCL for 20 years and then noticing it worsen is understandably concerning — and frustrating when access to treatment feels like an obstacle course!

Since you're already a Moffitt patient, that's actually a great starting point. Moffitt Cancer Center in Tampa has a dedicated dermatology and lymphoma team who may Show Full Answer

Living with CTCL for 20 years and then noticing it worsen is understandably concerning — and frustrating when access to treatment feels like an obstacle course!

Since you're already a Moffitt patient, that's actually a great starting point. Moffitt Cancer Center in Tampa has a dedicated dermatology and lymphoma team who may either offer NB-UVB phototherapy directly or can refer you to a trusted provider closer to Sarasota. A few suggestions worth exploring:

- Ask your Moffitt care team directly if they offer NB-UVB on-site or can refer you to a dermatologist in the Sarasota area who does
- Contact the Cutaneous Lymphoma Foundation (clfoundation.org) — they maintain a physician finder tool that can help locate CTCL specialists near you
- Ask about alternative skin-directed therapies if NB-UVB remains hard to access, such as topical treatments, other forms of phototherapy, or radiation therapy for early-stage disease

Since your condition has progressed recently, it's especially important to discuss updated treatment options with your specialist. What worked for years may need to be reassessed.

September 17
A MyLymphomaTeam Member

Yay! Good for you👏👏

September 22
A MyLymphomaTeam Member

I finally found Venice Avenue Dermatology, Venice, Florida. They have two of the standing light boxes for my therapy.
They were very acquainted with my non Hodgkin T Cell lymphoma. Very friendly staff and got me in the same day I called for an appointment, Friday and set up my first treatment for the following Monday. So so glad to have found this place on my own. Wish I had been told about them as it would have saved me a lot of stress.

September 22

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