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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I get checked every 3 months as I’m on CMR ACTIVE WATCH & wait I’ve not been feeling to well lately. High temperature. Fatigue & a really painful neck in my lymph node area. I can’t feel any swelling or any lumps. But feeling poorly I went to the A/E & was a admitted for a few days as my inflammation markers were high they did more-blood test & it came back I was very very low on iron. I’ve had one iron infusion got the 2nd one on Friday. So hopefully I’ll start to feel better… read more

September 30
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MyLymphomaTeam

It's completely understandable to feel frustrated that low iron wasn't caught sooner — especially when you're being monitored so regularly. The good news is it's now being treated, and those iron infusions should start making a real difference to how you feel. 💪

Yes, low iron and anemia are actually quite common with Show Full Answer

It's completely understandable to feel frustrated that low iron wasn't caught sooner — especially when you're being monitored so regularly. The good news is it's now being treated, and those iron infusions should start making a real difference to how you feel. 💪

Yes, low iron and anemia are actually quite common with follicular lymphoma. It can develop in a few ways:

- Follicular lymphoma affecting the bone marrow or spleen, reducing red blood cell production
- As a side effect of treatments
- Simply from not getting enough iron, B12, or folate through diet Routine 3-month blood tests typically focus on a standard complete blood count (CBC), which measures red blood cells, white blood cells, and platelets. Iron levels aren't always automatically included in that panel, which may explain why it was missed.

It's absolutely worth raising this with your haematologist at your next appointment and asking whether iron levels can be included in future monitoring. You deserve to feel as well as possible.

The symptoms you described — fatigue, high temperature, and neck pain near lymph nodes — are important to keep communicating to your medical team, especially while on watch and wait.

September 30

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