My iron was low also. My oncologist had me on high dose steroids and hemolytic meds Treating me for hemolytic anemia he thought, scratched his head and couldn’t understand why med not working. After a year of that chaos and many blood infusions , the DBCL showed up and as I mentioned then chemo and in remission.
NOW….they say I have too much iron and having phlebotomy every 2 weeks.
I couldn’t find anyone on here at that time experiencing this problem. Yours may not be the hidden lymphoma as mine.
My Oncologist kept saying we don’t see active lymphoma. In hospital critical 3 different times iron got so low. Hemoglobin down to 5.
Looking back, 2 different Oncologist now say the lymphoma had to be the cause for mine.
This same top Oncologist did a bone marrow biopsy few months ago and did an extensive genetic test. He told me I had 5% MDS. (Myelodysplastic syndrome) Now they tell me I don’t have it b/c my bloodwork back to normal range. I guess your body can do weird things even doctors can’t figure out.
It may take a little time, but I’m sure your anemia will get resolved. (You can’t push yourself with this anemia, get your rest) I’m sure they are keeping close watch on your hemoglobin?!
Sorry you’re experiencing this, but pray you will get answers soon. 🙏
Psalms107

MMM. My colonoscopy and endocoscopy only found GERD. I don't think anything will be found with the pill cam either. It probably is my lymphoma but my iron is low. So we shall see. Thanks for sharing.

Thank you and sorry you went through all that. Hopefully it will resolve with the supplements.

I had the pill cam procedure for anemia . Nothing was found. Lymphoma was behind my anemia even though doctors saw no lymphoma activity at the time. My hemoglobin kept dropping causing me to be anemic and oncologist couldn’t figure it out . Was given blood many times. Later, another type lymphoma showed itself and had chemo. I am in remission and no longer anemic.
The pill cam procedure is pretty simple. I even had the double ballon endoscopic trying to find if bleeding somewhere , nothing found. Lymphoma seem to be my personal problem.