I was diagnosed with CTCL in October 2022. My current treatment is corticosteroids and UVB therapy 3 times a week. I am concerned about the dramatic thinning of my hair. Has anyone else had this problem? If so, what did you do that helped?
Mine all fell out. Came back when I quit chemo.
I'm keeping the follicular mycosis fungoides rashes off most of my body thanks to UVB light and occasional cortisosteroids (though not, I'm afraid, off my face and scalp). The water's warming up rapidly out there and I'm wondering how swimming might affect my skin. Advice would be appreciated. Thanks, Tony😄
How long can you live with Lymphoma that is only on the skin? I have Mycosis Fungoides since 2017. Gets Bad in Cold weather. Use a steroid creme. Is there a Better Treatment for the skin Lymphoma??? I do go to a Dermatologist. But does Nothing more than cream. O.005 called Betamethasone Dipropionate.