Good Afternoon Everyone! I see my oncologist in April, and I will ask him about what I’m seriously pondering. I am in great need of a total knee replacement on my left knee. I had the other one done in 2014, before I was diagnosed with cancer. I was diagnosed in 2017 with b-cell, Marginal Zone, splenic, NHL. I treated for 5 years and have been off treatment for 1 yr and 5 mos. Has anyone ever had major surgery like this after being diagnosed with cancer? I desperately need to have it… read more
Yes just had a hip replacement. Everything was fine.
Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more
DO SOMETHING PHYSICAL
Force myself to go hangliding, body surfing, have sex, garden, get on my horse, go for a walk, yoga. Talk about it honestly.Remember that life is an impossible unlikely miracle.… read more
I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.
I was diagnosed with Primary Diffuse Large B Cell Non Hodgkin Lymphoma of the Brain in 2019. I did high dose chemotherapy for 5 1/2 months. I was in the hospital for 5 days on and 5 days off with IV c… read more
Two plus years of difficulty breathing and multiple Urgent Care/ER Md’s telling me all labs and heart look great! “Btw heres some muscle relaxers.” Monday this past week I hyperventilated in my MDs office. She sent for a stat CT of chest and there are multiple lymph nodes that are “very large”. On tues they did an abdominal CT they had to get special approval because of too much contrast under 24 hours. It came back clear and more labs/ekg, also clear. Worked me into a Pulmonologist Weds and he… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
When I initially had Follicular Lymphoma in 2019, three oncologists advised watch and wait since studies show that life expectancy is essentially the same regardless of when treatment is started. It… read more
I hope no one else is in my situation, but in case you are...
How would you deal with a spouse who is completely unsympathetic to your disease and treatment?
My current treatment schedule is every Monday, Tuesday and Thursday. (P.S. he has never gone with me and has his own vehicle). I scheduled a haircut for tomorrow (Wednesday) at 2 pm. My husband just read me the damn riot act for planning a hair appointment tomorrow when he wanted to go out together to run errands. He told me to never do… read more
Thank you Beth4!! I know it's absolutely maddening! I'm in SW Virginia, but we can still be here to support each other! 💗💗💗
If you do have or has had drainage from an infection, how did they get it to stop? Antibiotics aren't working, drainage tubes are pointless and only irritates the area. Surgery didn't work & im seriously reluctant to go through another for no relief. If anyone else has gone through this, how did they make it stop
How's it going? Seems like it has been over a month since we last chatted.
Did they figure out the bug and get it treated? What is the status of your drainage / pump? I wonder if… read more
My son has DLBCL and has had a stem cell transplant already but now the lymphoma has gone to his brain, secondary CNS. The doctors are saying that the CAR T Cell Transplant is an option for him.
So sorry Terri. I truly believe we lose good people too soon in life.
Good luck with it.