Lymphoma

Questions + Answers

Don't see your question? ask question
View:

Top 10 search results

Has anyone been treated with R+bendamustine more than once?

Has anyone been treated with R+bendamustine more than once?

I had treatment with Rituxan and bendamustine followed by Rituxan maintenance. This was well tolerated and gave me five years remission. Now the indolent lymphoma (NMZL) is back. My Dr says I can’t do that treatment again. Just wondering if anyone had more than one set of treatments with bendamustine. If not, what was the treatment after a relapse? I am finding little information about relapsed NMZL. Thanks

A MyLymphomaTeam Member said:

My husband finished 6 months of R-CHOP 15 months ago. He also had pneumonia during the treatments and after 5 months, they had to wash his lung out. He… read more

posted about 1 month ago

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this.
Anybody completed the 2 year? Was any… read more

A MyLymphomaTeam Member said:

My husband is starting the maintenance with the Rituxan next week. He has had 6 months of chemo (Bendeka) with the Rituxan. He is stable but not in… read more

posted about 1 month ago

I have Non Hodgkin's Lymphoma

I have Non Hodgkin's Lymphoma

I am in my 4th cycle of R-CHOP for non hodgkin's lymphoma. For the first week after treatment I have some nausea, and various side effects, but what I'm curious about is the low grade fever, aches and pains I experience for the following 2 weeks. Occasionally I feel like my heart is racing, but it always resolves itself. I'm wondering if anyone else experiences these side effects? My Doctors are very vague about the cause. My blood work is always good right before treatment, although… read more

A MyLymphomaTeam Member said:

I have had the same thing! Had a 5 day hospital stay with the last one. Praying for better results for us both this go round

posted 4 months ago

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?

A MyLymphomaTeam Member said:

I have MCL

posted 2 months ago

Stage 3 Follicular Non-Hodgkins Lymphoma..and wondering why no treatment has been recommended...

Stage 3 Follicular Non-Hodgkins Lymphoma..and wondering why no treatment has been recommended...

I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at… read more

A MyLymphomaTeam Member said:

I was on wait and watch for 9 years for follicular Non-hodgkin's Lymphoma. I am just now starting treatment. This disease sure does affect people at… read more

posted 15 days ago

Hair Growth After Chemotherapy completed

Hair Growth After Chemotherapy completed

My 19 year old daughter has Hodgkin's Lymphoma (subtype Nodular sclerosis Hodgkin lymphoma) and being treated with chemotherapy - AVBD regimen. She is just completing cycle 4 and has 2 more cycles to go. A major trauma for her has been the loss of her hair. It represents the whole cruelty and randomness of this disease and the absolute disruption of her life. A big question for her is what will her hair look like after it grows back. I want to reassure her, and I want to… read more

A MyLymphomaTeam Member said:

I lost all my blonde gently wavy hair. It is growing back now darker, still wavy, same texture, same thickness. I can always highlight it for awhile… read more

posted 4 months ago

Reoccurrences Have you heard of R and R ?

Reoccurrences Have you heard of R and R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

A MyLymphomaTeam Member said:

I’m in remission (1 month) but Dr is still having me do Rhituximab every 3 months.

posted 2 months ago

Adcetris

Adcetris

Is this the same name for Brentuximab? Anyone have this treatment by itself and have side effects?

A MyLymphomaTeam Member said:

I do Rituxan

posted 6 days ago