I had treatment with Rituxan and bendamustine followed by Rituxan maintenance. This was well tolerated and gave me five years remission. Now the indolent lymphoma (NMZL) is back. My Dr says I can’t do that treatment again. Just wondering if anyone had more than one set of treatments with bendamustine. If not, what was the treatment after a relapse? I am finding little information about relapsed NMZL. Thanks
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this.
Anybody completed the 2 year? Was any… read more
I am in my 4th cycle of R-CHOP for non hodgkin's lymphoma. For the first week after treatment I have some nausea, and various side effects, but what I'm curious about is the low grade fever, aches and pains I experience for the following 2 weeks. Occasionally I feel like my heart is racing, but it always resolves itself. I'm wondering if anyone else experiences these side effects? My Doctors are very vague about the cause. My blood work is always good right before treatment, although… read more
He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at… read more
My 19 year old daughter has Hodgkin's Lymphoma (subtype Nodular sclerosis Hodgkin lymphoma) and being treated with chemotherapy - AVBD regimen. She is just completing cycle 4 and has 2 more cycles to go. A major trauma for her has been the loss of her hair. It represents the whole cruelty and randomness of this disease and the absolute disruption of her life. A big question for her is what will her hair look like after it grows back. I want to reassure her, and I want to… read more
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma