Quick Links
About MyLymphomaTeam
Powered By
Hi Micheleri, Many thanks for your input and I will ask my consultant regarding your experience with said drugs. I wish you good health for the future. Best wishes John.
Its a persistent sensitivity enhanced by clothing brushing against my skin -pulling clothes up and over skin lightly brushing skin with anything. Affecting my lower back, lower abd, upper thighs like a large band . Finished radiation end of november and this started around new years- Dx NHL (marginal zone) with extra nodal malt lymphoma stomach 3/23.
Funny you should mention this -I had paresthesia fingertips and toes and requested a B12 from my md -it came back low was on oral dose and recheck not really changed now on sublingual with recheck… read more
I been fighting this since 2012 cancer doctor wanted me to do chemo twice I refuse I do medical and it helps me fighting it I know I'm 64 but my body hurts all the time my blood work been good I moved from California to Oregon and will be seeing new cancer doctor does anyone else go through this?
I'm 2 yrs and no treatments as I have cll and crohn's disease with r.a. also and some treatments will interfere with, well it's just all too much some days. My stomach is always bloated and my skin… read more
Yes I got told not to take any probiotics or live yogurts or even any probiotic vitamin supplements My consultant said that these were bad and could interfere with my Chemotherapy. I am having… read more
I had my thyroid removed a long time ago. It didn’t seem to interfere with chemo at all.I didn’t have radiation.
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
Since I just recently was diagnosed with CLL I am not yet on any form of treatment. I am beginning to have joint and bone pain. I thought it to be from arthritis or the fosomax which I just started taking but after reading some symptoms of the lymphoma, it may be from the CLL. What is a safe med to take for pain? At this point I’m just so confused and becoming more frightened. I will ask the oncologist at my next appointment.
Cathy
Thank you. I have less pain since I stopped the fosomax.
Has anyone gotten a urinary infection while on R-Chop?
No have been lucky not to get bladder infection but I did drink a lot of water.