My oncologist provides the chemo treatment but not any additional immune-supporting type of modalities to compliment and/or deal with the various side-effects of the R-CHOP plan. I am seeking an integrative MD to help me out with a more holistic approach to getting me through treatment and helping me post-treatment to heal the body
I have been experiencing incredibly debilitating nausea and tiredness, Days 4-7 after my Gazyva treatment and wondered if this is the window for Tumour lysis reaction or if something else is happening? As my treatment progresses, is it likely to be reduced as the amount of cancer being broken down is lessening? Is there some other mechanism that could be driving my symptoms. I am having steroids days 0-3 on treatment cycle, and have IV antinauseant that seems to wear off after 3 days. I am on… read more
Where are the stats on how long you live without treatment ? How many people out of a Drs client base decide NOT to do Chemo?
where is info on how many people decide not to treat or give up on treatment. Anyone think treatment is worse the disease ?
Some NHL's are not curable. I want to know how those people deal with their life, Hospice and pain control.
Anyone besides me considering not treating.
I can't be the only one.
I'd love to hear the perspective of others.
I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more
I know my diet has a direct influence on my level of inflammation. After feasting on Thanksgiving I felt AWFUL yesterday. Sugar especially. I did speak with a RD but basically had the knowledge she imparted. As with most things in life, I’m unable to “perfectly” follow eating all whole grains, eating a rainbow- especially raw veggies, etc. And with the other things the RD shared (red meat no more than 2x a mo, 8 glasses of water a day, etc) I do the best I can with my other medical issues, in… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more
I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.
Can someone please tell me if I am imaging this? I love to work and be active.