Connect with others who understand.

sign up log in
Resources
About MyLymphomaTeam

Connect with others who understand.

sign up log in
Resources
About MyLymphomaTeam
Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Medical marijuana"

reset

Is Anyone Working With Integrative Medicine To Help With Traditional Treatment, E.g. Ayurveda Or Immune-support Items

Is Anyone Working With Integrative Medicine To Help With Traditional Treatment, E.g. Ayurveda Or Immune-support Items

My oncologist provides the chemo treatment but not any additional immune-supporting type of modalities to compliment and/or deal with the various side-effects of the R-CHOP plan. I am seeking an integrative MD to help me out with a more holistic approach to getting me through treatment and helping me post-treatment to heal the body

A MyLymphomaTeam Member

Thanks Nanci! Ugh! To the doctor who exclaimed, "we give the chemo and immunotherapy like candy around here!" This would make my skin crawl. As patients we have right to ask for another… read more

Gazyva

Gazyva

I have been experiencing incredibly debilitating nausea and tiredness, Days 4-7 after my Gazyva treatment and wondered if this is the window for Tumour lysis reaction or if something else is happening? As my treatment progresses, is it likely to be reduced as the amount of cancer being broken down is lessening? Is there some other mechanism that could be driving my symptoms. I am having steroids days 0-3 on treatment cycle, and have IV antinauseant that seems to wear off after 3 days. I am on… read more

A MyLymphomaTeam Member

MM is not easily accessible in Australia, having only just been legalised and the cost is prohibitive, living on welfare payments :(

Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?

Has Anyone Refused Treatment. Opted For Palliative Care And A Assisted Death?

Where are the stats on how long you live without treatment ? How many people out of a Drs client base decide NOT to do Chemo?
where is info on how many people decide not to treat or give up on treatment. Anyone think treatment is worse the disease ?
Some NHL's are not curable. I want to know how those people deal with their life, Hospice and pain control.
Anyone besides me considering not treating.
I can't be the only one.

A MyLymphomaTeam Member

Chemo is not that bad. Mind over matter, if I don't mind it doesn't matter. A positive attitude helps a lot. 14 yrs ago my lymphoma was everywhere in my torso, bone marrow and in at least 3 organs. I… read more

What's The One Thing That's Helped You Most In Dealing With Cancer?

What's The One Thing That's Helped You Most In Dealing With Cancer?

Chemotherapy? Prayer? Your spouse? Diet? Church, masjid, temple, synagogue? Exercise? What's helped you most as an individual dealing with cancer?

A MyLymphomaTeam Member

I started simplifying my life immediately when diagnosed with endometrial cancer. I’d already been purging belongings in anticipation of retirement and downsizing but did so even more. I’m still… read more

Struggles With Fatigue And Chemo Brain

Struggles With Fatigue And Chemo Brain

I'd love to hear the perspective of others.

I was diagnosed with Diffuse large B cell lymphoma in Feb 2021. I finished R-CHOP chemo by May. In consultation with medical practitioners I somehow came to the conclusion that I would be back to normal within a few months. It has now been just over a year and my fatigue is still very significant. I wondered if there is something else going on with me...so I've arranged with my family doctor to explore and rule out other possible reasons for… read more

A MyLymphomaTeam Member

RobertM2
Hi! I had low vit D before my diagnosis. I had the high prescription to start with and now I take a regular vit D pill daily (OTC) it did really help. My B12 was low too. Good luck. Kelly… read more

Does Diet Affect How You Feel/your Level Of Inflammation? Have You Seen A Dietitian? Do You Have The Energy To Exercise?

Does Diet Affect How You Feel/your Level Of Inflammation? Have You Seen A Dietitian? Do You Have The Energy To Exercise?

I know my diet has a direct influence on my level of inflammation. After feasting on Thanksgiving I felt AWFUL yesterday. Sugar especially. I did speak with a RD but basically had the knowledge she imparted. As with most things in life, I’m unable to “perfectly” follow eating all whole grains, eating a rainbow- especially raw veggies, etc. And with the other things the RD shared (red meat no more than 2x a mo, 8 glasses of water a day, etc) I do the best I can with my other medical issues, in… read more

A MyLymphomaTeam Member

Hi Dave and thank you for your helpful reply! What was the organization, do you remember? It helps to hear I’m not the only one! I love it - PTSD of cancer. Perfect. What’s crazy is that a cardiac… read more

Rituxamab Maintenance Therapy - Do Or Don't???

Rituxamab Maintenance Therapy - Do Or Don't???

Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more

A MyLymphomaTeam Member

I'm following the same course of Rituximab following my treatment of benda/rituximab for non Hodgkin's lymphoma. Seems to be working for me so I am sticking with it.

How Do You Deal With Depression?

How Do You Deal With Depression?

Today is yet another good 👍☺️ day. But I'm thinking about depression. And I'm going to answer my own question and look forward to hearing how YOU deal with depression. There's been several times that I suffered severe depression. Having cancer is certainly reason for depression. I was diagnosed years ago with situational depression. I also have PTSD, caused by things that happened in the fifties and seventies. Sometimes psychiatric help is required, or some form of therapy, or medication. Even… read more

A MyLymphomaTeam Member

DO SOMETHING PHYSICAL
Force myself to go hangliding, body surfing, have sex, garden, get on my horse, go for a walk, yoga. Talk about it honestly.Remember that life is an impossible unlikely miracle.… read more

Just Went To Oncologist

Just Went To Oncologist

I don't know what is the matter with me. I am still fatigued. Sunday I was up and about, happy, etc. Monday I spent the entire day in bed....so fatigued. Informed my oncologist. He told me it has nothing to do with my chemotherapy because my last dose was 8 months ago. Said that my labs look great, etc.

Can someone please tell me if I am imaging this? I love to work and be active.

Thank you.

A MyLymphomaTeam Member

Hi Dianne, Look into medicinal mushroom extracts. Cordyceps for energy. I also was really tired just wanted to sleep all day. Started taking Turkey tail, reishi, Chaga, Cordyceps. Started feeling… read more

Do You Have Any Insurance Concerns When It Comes To Testing, Treatments, Or Your Diagnosis Overall?

Do You Have Any Insurance Concerns When It Comes To Testing, Treatments, Or Your Diagnosis Overall?

A MyLymphomaTeam Member

Rebecca
I hear you and agree that it's like 'one hand clapping' trying to get an estimate ahead of time and are for the most part unreliable, unidentifiable and useless
It's all about money. The… read more