I worry about the side effects so I would not consider Chemo. I have had this neck tumor for almost 2 years and afraid to treat it.
Did you not eat even natural sugars like fruits such as bananas. Etc.
Hi Teri, I don’t have lupus but I do have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Mast Cell Activation Syndrome, Ehlers Danlos Syndrome and Marginal Zone Lymphoma-Stage 4 and chronic pain… read more
I had 4 each were 3/weeks apart , I had Large BCell NHL and aggressive had 5 radiation on 7 c in neck , two bone marrow biopsy’s , and then 6 RCHOP 3 weeks apart hit remission in July2022 . My oncologist at Barrows said where mine was if it came back bones or brain, I appreciated the honesty, 79 now and feeling great . Had ptscan in Dec 2021 still clear
Great news I had 4, 15 mos remission
My non - Hoskings Lymphoma was first discovered in my eye. First treated by methotrexate injections. When found in brain, treated by methotrexate chemo in hospital . Since first chemo with RCHOP… read more
I am one year lymphoma free in June I have been doing great but now I might have it it my brain Tests are coming.
For everyone that made it through to remission from lymphoma in the brain or spinal area I am soooo happy for you! For those who are still struggling be sure that either you or your advocate ask… read more
I was diagnosed with DLBCL and had 6 x R-CHOP, last PET/CT scan spot on spleen and enlarged clavicle lymph node (partial response ), now waiting for radio therapy
I had a spinal tap in December because I had brain surgery for a tumour in October but nothing showed up. So hopefully they will continue monitoring it. Nothing fun about a spinal tap.
Recently the deep rash on my butt, thigh, groin and belt area has gotten much worse. And I am very concerned. A month ago the MD increased my Methotrexate from 8 to 10 mg once a week & the UV-B time and recommended I apply Chlobetasole cream every other day. Initailly I thought the treatment made some improvement but now I'm skeptical. I was hesitant about changing the protocol since it has worked fairly well for several years. Any suggestions would be appreciated.
I’d like any and all advice, information and stories on diffuse large B cell lymphoma!
😇🙌🏻🙏🏻😊
I was on methotrexate for several years before my lymphoma diagnosis. I was doing well. Now three years out my symptoms have come back. They don’t want me on the methotrexate as it may have caused the lymphoma. Anyone else dealing with auto immune issues?
I was told I had hurthel cell thyroid cancer in 2014 3 different doctors recommended removal of the thyroid. I did not remove my thyroid. In 2021 I was diagnosed with follicle nhl lymphoma after… read more