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Agree with Judy!
Looking it up on the internet, it doesnt seem very effective, and it looks pretty toxic, so I would love to hear from anyone who has had any experience of this drug, or any alternative treatment, for double-hit lymphoma.
You would have to ask them that question. My husband was diagnosed while we had the insurance. If we continue the policy every year without a lapse of coverage, we won’t ever have a problem getting… read more
If your interested they produce a great Lymphoma newseltter as well; https://cancerconnect.us19.list-manage.com/subs... C
However for the last 4-5 months my neck is sensitive and some days I feel pains on the side of my neck under the ears on both sides and at the back of the neck and shoulders. We have run several tests and they cannot find anything and YET I hurt..... worried about recurence as you can imagine.
I don't know what to do....
Thank you
Poly
thank you Kelly same to you and all of us really
However for the last 4-5 months my neck is sensitive and some days I feel pains on the side of my neck under the ears on both sides and at the back of the neck and shoulders. We have run several tests and they cannot find anything and YET I hurt..... worried about recurence as you can imagine.
I don't know what to do....
Thank you
Poly
Can anyone give me an estimate? Husband was approved for 70% assistance/discount through cancer center but they still can’t give an estimate or what we’re taking 70% off of??
Rebecca3, I agree with you about lifting the veil of secrecy.
Hi Cristal
Thank you for your response. I’ve been battling allergies so I’m
Avoiding caffeinated drinks and chocolate. I’m better but have an annoying cough that just keeps causing me coughing… read more
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
My check up yesterday, I knew would be with assistant, I met 1 time prior and tried not to make judgment. Yesterday I asked pointed questions! I couldn't get an answer!!!! Agh! I asked "what is the name of my leukemia?" She's scanning my chart online... ummm I don't know, it doesn't say. Wow I say. The initial blood work said CD5 small B cell leukemia. She then says "yeah, yeah it says that". Then I asked "Is that the name then?" She said "Um I don't know" I said OK then what's the name of… read more
Thank you