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Nodal marginal zone lymphoma

Nodal marginal zone lymphoma

Would like to contact others with this lymphoma

A MyLymphomaTeam Member said:

My initial radiation treatment was good for over four years. Hope yours lasts even longer!

posted 3 months ago

I have a question about bone pain after 4 years of clear scans.

I have a question about bone pain after 4 years of clear scans.

have a question. I have been clear for 4 years, but in the last 6 months I have been having bone pain. My oncologist ran panels of bloodwork. The normal panels like CBC, etc, Rheumatoid arthritis, lupus, inflammation, all came back clear, which is great, but im still in pain daily. Has anyone experienced anything like this with lymphoma? Am I experiencing a recurrence, or is this all together something unrelated?

A MyLymphomaTeam Member said:

I went to my nephrologist Monday, and both my magnesium and potassium were both low, so he increased my intake... but I do have an appt with my… read more

edited, originally posted 3 days ago

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

My spouse was diagnosed with stage IV Non-Hodgkins Lymphoma in July 2019.

He refused chemotherapy and refuses to talk about his situation. He does nothing but sit and watch tv. Are there any suggestions about how to be supportive of his choices?

A MyLymphomaTeam Member said:

I have MCL

posted 2 months ago

Reoccurrences Have you heard of R and R ?

Reoccurrences Have you heard of R and R ?

Cancer port
Chemo
Our son needed every other month Rituxan or Rhituximab and it saved his life
Non Hodgkin's Lymphoma

A MyLymphomaTeam Member said:

I’m in remission (1 month) but Dr is still having me do Rhituximab every 3 months.

posted 2 months ago

Has anyone been treated with R+bendamustine more than once?

Has anyone been treated with R+bendamustine more than once?

I had treatment with Rituxan and bendamustine followed by Rituxan maintenance. This was well tolerated and gave me five years remission. Now the indolent lymphoma (NMZL) is back. My Dr says I can’t do that treatment again. Just wondering if anyone had more than one set of treatments with bendamustine. If not, what was the treatment after a relapse? I am finding little information about relapsed NMZL. Thanks

A MyLymphomaTeam Member said:

My husband finished 6 months of R-CHOP 15 months ago. He also had pneumonia during the treatments and after 5 months, they had to wash his lung out. He… read more

posted about 1 month ago

Watch and see

Watch and see

I've been on watch and see approach for 9 months.3a follicular lymphoma. I go to a new oncologiston Aug 19. Still no symptoms. I feel good right now. Should i wait to get treatments until i have symptoms

A MyLymphomaTeam Member said:

Get a 2nd opinion... wont hurt...

posted 3 months ago

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

Maintenance program with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]

I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this.
Anybody completed the 2 year? Was any… read more

A MyLymphomaTeam Member said:

My husband is starting the maintenance with the Rituxan next week. He has had 6 months of chemo (Bendeka) with the Rituxan. He is stable but not in… read more

posted about 1 month ago