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Real members of MyLymphomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more

May 24, 2020
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Answer Summary

Members rallied around someone navigating a lengthy undiagnosed illness with swollen lymph nodes, night sweats, and body pain, with the... Read more

Members rallied around someone navigating a lengthy undiagnosed illness with swollen lymph nodes, night sweats, and body pain, with the overwhelming advice being to seek a second opinion at a major cancer center like MD Anderson, Mayo Clinic, or Sloan Kettering. Several members shared personal experiences where switching doctors or hospitals led to faster diagnosis and treatment, with many noting that biopsies rather than surgery are the standard first step. A recurring theme was self-advocacy and trusting your body, with the community offering both practical guidance and warm emotional support.

A MyLymphomaTeam Member

As a nurse and a survivor “Get thee to a top cancer center.” MD ANDERSON in Houston is a top one in Lymphoma.

February 22, 2023
A MyLymphomaTeam Member

get to a different oncologist!!!!!!

June 14, 2023
A MyLymphomaTeam Member

I'm so far cancer free it's been 28 years now thanks to o.h.a.of spfd.mo

April 15, 2023
A MyLymphomaTeam Member

Yes back 24 years ago
I wanted to get it started because I only had 6 months to live at the most I was put watch and whate I had
H.l. but when my cancer
Had progressed my cancer doctor was ready to start my treatments at o.h.a. of spfd.mo I was scared but I had no choice if I wanted to live at the end
Of six months I was in remission . I did follow
Up.s for 24 years so I could catch it if it returned. This year was my 24 year .I whent to
My cancer doctor .instead of saying see you next year. He said come back in two months .on June 30 th
I go back to see my doctor . Now I'm facing the prospects of taking
Cancer treatments again
I'll know more then
Wishe me good luck.

May 29, 2021
A MyLymphomaTeam Member

After my biopsy of my lymph glands in my neck, I was put on chemotherapy. My stage was non-Hodgkin’s lymphoma, large B cell, very aggressive stage, three or four. Amazingly, after my first chemotherapy treatment two days later, the large lymph glands in my neck were gone.!! My oncologist assured me that if I didn’t have the full treatment, it would come back so I did finish all six treatments. Very stressful but also very interesting year! I got my power port out last week. Power ports are wonderful!

September 16, 2023

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